very long piece (I've only skimmed through it).
https://newrepublic.com/article/168965/might-long-covid-wrong
eta:
(from Esther12)
Archive link that avoids giving them clicks:
https://archive.vn/L471V
Abstract
Background
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is characterized by persistent physical and mental fatigue. The post-COVID-19 condition patients refer physical fatigue and cognitive impairment sequelae. Given the similarity between both conditions, could it be...
Suppose that you could lure research groups into studying ME/CFS, who would you like to bring to this field? Are there any top biomedical researchers who stand out or who have an expertise that might particularly suited in studying ME/CFS? Or: who are the most respected medical researchers that...
Research Objectives
To capture symptom experiences of persons living with ME/CFS to increase clinicians’ understanding of this complex illness.
Design
Case Series.
Setting
Multi-institutional collaboration.
Participants
A convenience sample of 12 persons with mild (n=16.7%), moderate...
Abstract
Objectives Primary objective: to determine the point prevalence and incidence rate of severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in children aged 5–16 years over 13 months. Secondary objectives: to describe the demographic features, symptoms, impact on activities...
This post has been copied and following discussion moved from
ME/CFS services in the United Kingdom
job ad
Royal Cornwall Hospitals
Specialist Occupational Therapist...
Master of Clinical Science Thesis
Circulating Leptin Levels in Patients with Myalgic Encephalomyelitis Chronic Fatigue Syndrome and/or Fibromyalgia: a Systematic Review
Submitted for the degree of Master of Clinical Science By Michael Musker
March 2021
The University of Adelaide JBI...
[note: I just got this via a Medscape alert, I have not read it yet, just grabbed a few sections for the quote below]
Do Fatigue and Exercise Intolerance Post-COVID-19 Indicate a Chronic Disease?
Authors: News Author: Miriam E. Tucker; CME Author: Charles P. Vega, MDFaculty and Disclosures
CME...
Support Experiences of Children and Youth with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Epilepsy in New Zealand Schools: A Parental Perspective
A thesis presented in partial fulfilment of the requirements for the degree of Master of Science with an Endorsement in Health...
Unravelling the nature of postexertional malaise in myalgic encephalomyelitis/chronic fatigue syndrome: the role of elastase, complement C4a and interleukin-1β
Abstract
Abstract. Nijs J, Van Oosterwijck J, Meeus M, Lambrecht L, Metzger K, Frémont M, Paul L (Vrije Universiteit Brussel...
Post with a link to the final paper here
********
Source: Research Square
Preprint
Date: September 21, 2022
URL: https://www.researchsquare.com/article/rs-2044838/v1
Circadian skin temperature rhythm and dysautonomia in Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome: the role...
This post has been copied from this thread:
Percentage of people with ME/CFS able to work or attend school
The latest Virology blog:
“Trial By Error: Research From GET/CBT Ideological Brigades Shows No Improvements
in Work Status” see...
Recently the percentage of people able to work came up in a forum thread.
A statistic of 75% of people with ME/CFS not being able to work was mentioned. This may have come from the CDC's February 2016 Public Health Grand Rounds bank of slides. Slide 22, part of Elizabeth Unger's presentation...
- Only a couple dozen doctors specialize in chronic fatigue syndrome (ME/CFS). Now their knowledge could be crucial to treating millions more patients.
https://www.theatlantic.com/health/archive/2022/09/mecfs-chronic-fatigue-syndrome-doctors-long-covid/671518/
Abstract
Background
Patients with long-COVID often complain of continuous fatigue, myalgia, sleep problems, cognitive dysfunction, and post-exertional malaise. No data are available on EMG recording of evoked myopotentials (M-waves) or exercise-induced alterations in long-COVID patients...
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