me/cfs

  1. Andy

    Protocol: DecodeME: community recruitment for a large genetics study of ME/CFS, 2022, Devereux-Cooke et al

    Abstract Background Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a common, long-term condition characterised by post-exertional malaise, often with fatigue that is not significantly relieved by rest. ME/CFS has no confirmed diagnostic test or effective treatment and we lack...
  2. Suffolkres

    United Kingdom: Hospital has left my daughter in ME agony, claims mother, July 17 2022

    https://www.thetimes.co.uk/article/hospital-has-left-my-daughter-in-me-agony-claims-mother-3kvrdzwjl Hospital has left my daughter in ME agony, claims mother July 17 2022, 12.01am Ella Copley with her mother, Joanne McKee, before her illness Ella Copley, 17, from Tingley, West Yorkshire, has...
  3. Andy

    The Qigong of Prolong Life With Nine Turn Method Relieve Fatigue, Sleep, Anxiety and Depression in Patients With CFS:, 2022, Xie et al

    Full title: The Qigong of Prolong Life With Nine Turn Method Relieve Fatigue, Sleep, Anxiety and Depression in Patients With Chronic Fatigue Syndrome: A Randomized Controlled Clinical Study Background: Chronic fatigue syndrome (CFS) is a complex disease of unknown etiology and mechanism. The...
  4. ahimsa

    "Freakonomics, MD" podcast, episode 45: Could Long Covid Help Treat Other Chronic Illnesses?

    Freakonomics, MD Episode 45: Could Long Covid Help Treat Other Chronic Illnesses? https://freakonomics.com/podcast/could-long-covid-help-treat-other-chronic-illnesses/ "Chronic fatigue syndrome looks remarkably similar to Long Covid, but has been ignored by the medical community. Could...
  5. Andy

    ME Genetics Research Symposium, Edinburgh, 14th September 2022

    ** Early details, more will come closer to the date ** Action for M.E. and the MRC Human Genetics Unit, University of Edinburgh are holding a genetics research symposium on 14th September 2022, at the University of Edinburgh. This will be a hybrid option for those that would prefer/are unable...
  6. T

    Recording of Dr James Baraniuk's May 17, 2022 webinar, "Nociplastic pain in ME/CFS and overlap with migraine and other disorders"

    =AZWsB1lk0EpAXaCQ0nj8SRWQI_kxeuXU71aL10LVF8T_-HN75iYW0uYJ8UVA0F_hzdI1WfDu6wv2JdRP1OefmlxPPEyBuD96ts-fFHmly8AtwFU2h_aLjcU2gwicclaYw8TQjr9KWKJmFG8ckSZ7yYbCxbq4nLBS9Pt6PqtaiPnUPgAuW9rkhyMddMc4G-ZkPfQ&__tn__=-UC%2CP-R']National Centre for Neuroimmunology and Emerging Diseases - NCNED...
  7. rvallee

    Patient-led Research Collaborative and Fund for Long COVID

    Moved post. This thread collects together several threads on the same topic. Cryptocurrency investors (well, in this case inventor) are contributing more to researching a major health crisis than all medical institutions combined. The UK's NIHR funding was mostly wasted on pet projects and the...
  8. Sly Saint

    The Poisoned Well: a history of ME in 20 tweets, July 2022 - Valerie Eliot Smith

    https://valerieeliotsmith.com/2022/07/05/the-poisoned-well-a-history-of-me-in-20-tweets/
  9. Andy

    Protocol Trial registration: Low-dose Naltrexone for Post-COVID Fatigue Syndrome, 2022, Luis Nacul, British Columbia Women's Hospital & Health Centre

    Clinical trial registration. There is a growing number of individuals who do not recover to previous levels of health and function following an acute infection by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), but rather develop what has been referred to as 'Long-COVID'...
  10. Sly Saint

    Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman

    full title: Oxaloacetate Treatment For Mental And Physical Fatigue In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long-COVID fatigue patients: a non-randomized controlled clinical trial Abstract Background There is no approved pharmaceutical intervention for Myalgic...
  11. Sly Saint

    United Kingdom: NHS East Kent Hospitals University - CFS/ME

    Chronic Fatigue Syndrome (CFS) / Myalgic Encephalopathy (ME) and Physiotherapy: Information leaflet pdf link here...
  12. ahimsa

    2022 Institute for Neuro-Immune Medicine Conference (Dr. Nancy Klimas and other speakers)

    A recording of the 2022 Institute for Neuro-Immune Medicine (INIM) Conference, held on June 10, has been posted to YouTube.
  13. Sly Saint

    Clinical Characteristics of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Diagnosed in Patients with Long COVID, 2022, Tokumasu et al

    This is an early access version, the complete PDF, HTML, and XML versions will be available soon. Abstract Background and Objectives: COVID-19 can be serious not only in the acute phase but also after the acute phase and some patients develop ME/CFS. There have been few studies on patients...
  14. W

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    I thought it would be good to start a thread for news and updates from Jarred Younger and his "Neuroinflammation, Pain, and Fatigue Laboratory" at UAB since he is active on Facebook and has a newsletter Link to Facebook page...
  15. LarsSG

    Orthostatic Challenge Causes Distinctive Symptomatic, Hemodynamic and Cognitive Responses in Long COVID and ME/CFS, 2022, Vernon et al

    Background: Some patients with acute COVID-19 are left with persistent, debilitating fatigue, cognitive impairment (“brain fog”), orthostatic intolerance (OI) and other symptoms (“Long COVID”). Many of the symptoms are like those of other post-infectious fatigue syndromes and may meet criteria...
  16. LarsSG

    Increased risks of cancer and autoimmune disease among the first-degree relatives of patients with ME/CFS, 2022, Moslehi et al

    Abstract Background: Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) is a disabling multi-system complex disorder with prevalence of 875 per 100,000 (up to 3.4 million people) in the United States. There are no known etiologic or risk factors and no approved treatments for ME/CFS...
  17. LarsSG

    Intracellular Nutritional Biomarker Differences in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ..., Krishnakumar et al, 2022

    Objectives A comparison of the nutritional biomarkers between ME/CFS subjects and healthy controls (HC) was undertaken on secondary data collected from an IRB approved cross-sectional study in ME/CFS patients. Methods ME/CFS participants were recruited per the 2018 revised Canadian Clinical...
  18. Hutan

    Names for ME/CFS in languages other than English

    I've recently come across the problem of a name for ME/CFS in the Maori language seemingly being created by a translator to be the equivalent of 'chronic fatigue' but using an uncommon word for 'chronic' that can also mean loitering and shirking. (discussed here News from Aotearoa/New Zealand...
  19. LarsSG

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    Abstract We have previously demonstrated that platelet poor plasma (PPP) obtained from patients with LongCovid/Post-Acute Sequelae of COVID-19 (PASC) is characterized by a hypercoagulable state reflected in hyperactivated platelets and the presence of considerable numbers of fibrin(ogen) amyloid...
  20. Andy

    The Role of Kynurenine Pathway and NAD + Metabolism in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2022, Dehhaghi et al

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, complex, and highly debilitating long-term illness. People with ME/CFS are typically unable to carry out their routine activities. Key hallmarks of the disease are neurological and gastrointestinal impairments...
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