media coverage

  1. Hutan

    DecodeME in the media

    This thread is for media and social media items about DecodeME following the release of the results, and for discussion about the media items. For the analysis of the DecodeME results, there will be a research thread for the paper which we will link here. Edit: The preprint thread here...
  2. SNT Gatchaman

    Different patterns of persistent somatic symptoms after COVID-19 reported by the Dutch media and the general population, 2024, Ballering et al.

    Different patterns of persistent somatic symptoms after COVID-19 reported by the Dutch media and the general population Ballering; Plug; van Zon; Olde Hartman; Das; Rosmalen OBJECTIVE Post COVID-19 condition is characterized by persistent symptoms after COVID-19 with yet unknown etiology. To...
  3. Yann04

    Media Opportunities

    A thread for opportunities to get your story (and ME / Long COVID) featured in the media, that don’t quite deserve their own threads.
  4. B

    Tell the New York Times about ME

    https://www.nytimes.com/2024/02/01/well/chronic-disease-callout.html?smid=nytcore-ios-share&referringSource=articleShare From the article: I’m Knvul Sheikh, a reporter on the Well desk at The New York Times, where I cover health and wellness. I’ve written about the seemingly never-ending cycle...
  5. Sean

    People with invisible disabilities like me are routinely disbelieved — and it can have long-lasting effects (mentions ME)

    • Sean
    • Thread
    • fibromyalgia invisible disabilities media coverage myalgic encephalomyelitis stigma
    • Replies: 7
    • Forum: General ME/CFS news
  6. ahimsa

    “Science Journalism & Disability” Pop-up Panel & Discussion on Tuesday, November 15

    [I didn't know where to put this - please move if needed] Seen on twitter: a “Science Journalism & Disability” Pop-up Panel & Discussion is scheduled for Tues, Nov 15, 5 pm Eastern Standard Time. RSVP. Text of tweet: "I’m excited & honored to announce a “Science Journalism & Disability” Pop-up...
  7. Sly Saint

    “That's why they don't believe you, you don't look sick!”: Creating Medical Credibility and patient visibility for ME/CFS through Television

    by Giada Da Ros https://www.academia.edu/43500038/_THATS_WHY_THEY_DONT_BELIEVE_YOU_YOU_DONT_LOOK_SICK_CREATING_MEDICAL_CREDIBILITY_AND_PATIENT_VISIBILITY_FOR_ME_CFS_THROUGH_TELEVISION eta: the author Giada Da Ros @Giada_Da_Ros TV critic; President of the CFS/ME Italian Association (and...
    • Sly Saint
    • Thread
    • article cfs associazione italiana cfs italian association giada da ros invisible illness italy me/cfs media media coverage television
    • Replies: 8
    • Forum: General ME/CFS news
  8. Andy

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    https://valerieeliotsmith.com/2019/01/07/changing-the-narrative-1-exploring-a-new-approach-to-strategic-communications-in-the-me-community/
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