multiple sclerosis

  1. adambeyoncelowe

    ME and MS show remarkable levels of similarity in phenomenology and neuroimmune characteristics

    This is a few years old, but really highlights the similarities between these two illnesses (and thus makes the difference in treatments more stark). Does anybody with any understanding of the specifics here have any comments? What do we think: is ME like MS? Certainly, the early literature...
  2. TiredSam

    How I'm feeling after my MS ‘body reboot’ - BBC Website

    http://www.bbc.co.uk/news/resources/idt-sh/caroline_wyatt_multiple_sclerosis ME and Rituximab get a very brief mention each. An interesting account of HSCT ("Stem Cell Reboot").
  3. adambeyoncelowe

    Did a Multiple Sclerosis Study Give Us Clues About ME/CFS and Fibromyalgia?

    From what I can see, there's a lot of conjecture here, more than anything else. It's looking at the role of hormones in autoimmune diseases, and whether testosterone is protective. There are a few links to small/emerging studies. Info here...
  4. Barry

    Stem cell transplant 'game changer' for MS patients

    Two threads on the same topic and created at the same time have been merged
  5. E

    ME Association Press Release: People with M.E. ‘measurably more disabled’ than people with Multiple Sclerosis

    ME Association Press Release: People with M.E. ‘measurably more disabled’ than people with Multiple Sclerosis | 16 March 2018 http://www.meassociation.org.uk/2018/03/me-association-press-release-people-with-m-e-measurably-more-disabled-than-people-with-multiple-sclerosis-16-march-2018/
  6. Cheshire

    Functional Status and Well-Being in People with ME/CFS Compared with People with MS and Healthy Controls (2018) Kingdon and al.

    Caroline C. Kingdon, Erinna W. Bowman, Hayley Curran, Luis Nacul, Eliana M. Lacerda https://link.springer.com/article/10.1007%2Fs41669-018-0071-6
  7. Sly Saint

    How sexism is hindering medical research - Brisbane times Naomi Chainey

    The author has ME. " 6 February 2018 — 11:00pm As recently as 1921, MS (multiple sclerosis) was erroneously considered more common in men. By the late 1940s, a more even gender split was presumed. By 1960 it was posited that women might actually be slightly more prone to the condition. With the...
  8. MSEsperanza

    A better example for patient advocacy re fatigue from a German patient organisation -- for Multiple Sclerosis

    Lacking the resources to write more -- just would like to let you know how the German Patient Organisation for MS "AMSEL" handles the issue of false (psycho-) perceptions of illness related fatigue. Apologies for the Google translation (always funny though) - hope the key message is not lost...
  9. Andy

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    Paywalled at https://www.sciencedirect.com/science/article/pii/S0022399917304361
  10. Andy

    Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS, 2017, Nacul et al

    From Jun 2017 Full text at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5477754/
  11. wastwater

    FOX genes

    foxp3 is relevant for MS could other fox genes be relevant for me/cfs I never see this mentioned and think it might be worth a look https://multiplesclerosisnewstoday.com/2017/07/07/foxp3-gene-mutations-may-cause-aggressive-immune-system-responses-in-multiple-sclerosis-other-diseases/...
  12. Marco

    The Dopamine Imbalance Hypothesis of Fatigue in Multiple Sclerosis

    For those interested in these things this is a useful review (and hypothesis) of possible mechanisms for 'central fatigue' in MS and other neurological disorders (full paper). Not directly relevant to ME/CFS although several ME/CFS studies are referenced. Possibly the most interesting (and...
  13. Webdog

    Common acne medication offers new treatment for multiple sclerosis

    This article was from a few months ago, but I just saw it. It's about multiple sclerosis, but perhaps something useful can be gleaned from it. Original article: http://www.nejm.org/doi/10.1056/NEJMoa1608889 Is anyone aware of any minocycline studies for ME/CFS?
  14. Sasha

    Physiological measures in participants with CFS, multiple sclerosis and healthy controls following repeated exercise, 2017, Hodges et al

    Published back in August but I didn't notice it then. Small pilot study. http://onlinelibrary.wiley.com/wol1/doi/10.1111/cpf.12460/abstract
  15. Cheesus

    Doctors trial immune therapy used in MS to treat schizophrenia

    https://www.theguardian.com/society/2017/nov/03/radical-new-approach-to-schizophrenia-treatment-begins-trial
  16. Andy

    Computer Simulation Suggests Multiple Sclerosis is a Single Disease

    Just thought this was interesting. http://neurosciencenews.com/multiple-sclerosis-computer-simulation-7828/ Full open access at http://journals.plos.org/ploscompbiol/article?id=10.1371/journal.pcbi.1005757
  17. Adrian

    Public Allergy Drug Improves Function in Patients with Chronic Injury from Multiple Sclerosis

    e I don't think this has much interest for ME because they are talking about repairing Myelin. But I think it is a good example of drug re purposing. https://www.ucsf.edu/news/2017/10/408646/allergy-drug-improves-function-patients-chronic-injury-multiple-sclerosis
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