multiple sclerosis

  1. J

    MS research versus ME/CFS research

    So the big European MS meeting just finished a couple of days ago. The scientific program book is 131 pages long for a three day meeting!! https://www.professionalabstracts.com/ectrims2019/programme-ectrims2019.pdf Why is there so much more MS research than MECFS research? Are there really...
  2. Sly Saint

    Biomarkers of intestinal barrier function in multiple sclerosis are associated with disease activity. 2019, Camarra-Lemaroy,Silva,Greenfield,Liu et al

    https://www.ncbi.nlm.nih.gov/pubmed/31317818 scihub https://sci-hub.tw/10.1177/1352458519863133
  3. J

    Lipid profile is associated with decreased fatigue in individuals with progressive multiple sclerosis following a diet-based intervention: Results fro

    Lipid profile is associated with decreased fatigue in individuals with progressive multiple sclerosis following a diet-based intervention: Results from a pilot study https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0218075 Popular article...
  4. Sly Saint

    Measuring fatigue in Multiple Sclerosis - The Modified Fatigue Impact Scale

    Download the MSQLI: A User’s Manual (PDF) https://www.nationalmssociety.org/For-Professionals/Researchers/Resources-for-Researchers/Clinical-Study-Measures/Modified-Fatigue-Impact-Scale-(MFIS) Fatigue Impact Scale (Fisk et al, 1994b)...
  5. J

    Effect of dalfampridine on information processing speed impairment in multiple sclerosis, 2019

    https://n.neurology.org/content/93/8/e733 Popular article Old MS Drug May Improve Cognitive Function https://www.medscape.com/viewarticle/916495
  6. Dolphin

    "For patients having a Multiple Sclerosis relapse, vaccination should be delayed until the relapse is no longer active"

    I'm not a medical doctor so I don't know whether suggestions like this are common for other illnesses. It seems plausible to me on a superficial level that possibly people with ME/CFS should avoid vaccinations during relapses. Like many things, it would be great to have more research done on...
  7. J

    Microstructural fronto-striatal and temporo-insular alterations are associated with fatigue in patients with multiple sclerosis 2019 Palotai et al

    https://multiplesclerosisnewstoday.com/news-posts/2019/08/26/persistent-ms-related-fatigue-linked-to-damage-in-specific-brain-regions/ Study here https://journals.sagepub.com/doi/10.1177/1352458519869185
  8. C

    MS society funds study of immune system to understand why pregnancy can alleviate autoimmune conditions, possible ME relevances

    https://www.mssociety.org.uk/research/latest-research/latest-research-news-and-blogs/could-we-harness-the-power-of-pregnancy-to-stop-ms?
  9. Binkie4

    Public Nice guidelines and Cannabis treatment for epilepsy and MS

    https://www.theguardian.com/society/2019/aug/08/watchdog-declines-to-back-nhs-cannabis-treatment-for-epilepsy There seem to be some worrying parallels with Nice’s review of guidelines for ME. If only clinical trials are considered as evidence, where do we stand? Also if the guidelines committee...
  10. wastwater

    T cell-selective deletion of Oct1 protects animals from autoimmune neuroinflammation while maintaining neurotropic pathogen response (2019) Tantin

    https://multiplesclerosisnewstoday.com/news-posts/2019/07/03/study-in-mice-suggests-possible-treatment-approach-for-multiple-sclerosis-in-humans/
  11. Woolie

    Multiple sclerosis-associated fatigue. Krupp et al. (2010)

    Not a new article, but I was struck by this comment on the relation between fatigue and pro-inflammatory cytokines: link to the article here There are are no consistently observed associations between fatigue in ME and levels of pro-inflammatory cytokines. But its interesting to see we're not...
  12. J

    The effect of evening primrose oil on fatigue and quality of life in patients with multiple sclerosis

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6003444/ Fig. 5 looks pretty good. Anybody try this?
  13. A

    MS - ancient viral DNA and inflammatory immune response

    Interesting bit if research via Twitter tonight. Relevant to ME ? https://www.pasteur.fr/en/research-journal/news/discovery-mechanism-responsible-chronic-inflammation-patients-suffering-multiple-sclerosis?hootPostID=81f61df8a3de6b440bfd9a65a34a12ef
  14. C

    MS society question people on the streets to ask what they know about MS

    I thought that this was interesting and would be interesting to do with ME so we target our education efforts better. I was wondering whether it Can be incorporated into #MISSINGMILLIONS when our people are on the streets , perhaps giving out an information leaflet alongside? Tbh I suspect few...
  15. leokitten

    Living Proof: documentary about MS and corruption in pharmaceutical industry and national MS society

    I enjoyed watching this documentary recently, absolutely heartbreaking Living Proof (2017) https://www.imdb.com/title/tt6604174/ If ME ever gets to the stage where MS is in terms of awareness, research funding, pharmaceutical industry involvement and treatments, this story shows how patient...
  16. MSEsperanza

    Fatigue measurement scales

    Elbers, R.G., Rietberg, M.B., van Wegen, E.E.H. et al. (2012), Self-report fatigue questionnaires in multiple sclerosis, Parkinson’s disease and stroke: a systematic review of measurement properties, Qual Life Res (2012) 21: 925. https://doi.org/10.1007/s11136-011-0009-2 Abstract: Chalder...
  17. J

    Feasibility RCT of cocoa for fatigue in MS (2019) Coe et al

    Drink cocoa for chronic fatigue. Not a recommendation. Not looked at details. https://jnnp.bmj.com/content/early/2019/01/31/jnnp-2018-319496
  18. NelliePledge

    Current Research Project: Understanding the neural mechanisms of fatigue & memory impairments in CFS/ME & Multiple Sclerosis using fMRI

    I tried looking to see if there’s already a thread for this couldn’t find one but my search skills are a bit ropey please delete if there is one http://www.bristol.ac.uk/cricbristol/research/fatigue-research/ Crawley and others at Bristol doing fMRIs on CFS and MS folks
  19. Alvin

    Researchers Find A Web Of Factors Behind Multiple Sclerosis

    https://www.npr.org/sections/health-shots/2019/01/21/684495345/researchers-find-a-web-of-factors-behind-multiple-sclerosis
  20. Andy

    Hope, disappointment and perseverance: Reflections of people with ME/CFS and MS participating in biomedical research..., 2019, Lacerda et al

    Open access at https://onlinelibrary.wiley.com/doi/full/10.1111/hex.12857
    • Andy
    • Thread
    • 2019 diagnosis lacerda lshtm me/cfs multiple sclerosis paper patient experience qualitative treatment
    • Replies: 2
    • Forum: ME/CFS research
Back
Top Bottom