netherlands

  1. Simon M

    National patterns of age of ME/CFS onset

    Copied from the News from The Netherlands thread I'm hoping this is a good place to ask about diagnosis practices in the Netherlands. Along with Audrey Ryback (a researcher at Edinburgh in Chris Ponting's group) and @chillier, I'm using results from the 2021 EMEA survey to examine data on the...
  2. Hutan

    Netherlands: NKCV (Hans Knoop)

    https://nkcv.nl/ Nederlands Kenniscentrum Chronische Vermoeidheid This Netherlands clinic takes a psychosomatic approach, offering 'mind over matter' treatments. Hans Knoop and Tanja Kuut are part of a large team of psychologists.
  3. John Mac

    Trial Report Inflammatory profiles are associated with long COVID up to 6 months after COVID-19 onset, 2024, Wynberg et al

    Full title: Inflammatory profiles are associated with long COVID up to 6 months after COVID-19 onset: A prospective cohort study of individuals with mild to critical COVID-19 Abstract Background: After initial COVID-19, immune dysregulation may persist and drive post-acute sequelae of COVID-19...
  4. Dolphin

    Trial Report Comorbidity and Sex Differences in Functional Disorders and Internalizing Disorders, 2024, Thomas

    Free full text: https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4785891 Comorbidity and Sex Differences in Functional Disorders and Internalizing Disorders 26 Pages Posted: 11 Apr 2024 Nathaniel Thomas affiliation not provided to SSRN Nathan A. Gillespie affiliation not provided to SSRN...
  5. Wyva

    Fatigue and symptom-based clusters in post COVID-19 patients: a multicentre, prospective, observational cohort study, 2024, Cornelissen et al

    Abstract Background In the Netherlands, the prevalence of post COVID-19 condition is estimated at 12.7% at 90–150 days after SARS-CoV-2 infection. This study aimed to determine the occurrence of fatigue and other symptoms, to assess how many patients meet the Myalgic Encephalomyelitis/Chronic...
  6. Grigor

    Symptom profiles and their risk factors in patients with post-COVID-19 condition: a Dutch longitudinal cohort study.

    Sander K R van Zon, Aranka V Ballering, Sandra Brouwer, Judith G M Rosmalen, Lifelines Corona Research Initiative. Abstract Background To improve research and care for patients with post-COVID-19 condition more insight into different subtypes of post-COVID-19 condition and their risk factors...
  7. Sly Saint

    Producing ME/CFS in Dutch Newspapers. A Social-Discursive Analysis About Non/credibility 2023, de Boer, Slatman

    ABSTRACT Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a highly contested illness. This paper analyzes the discursive production of knowledge about, and recognition of ME/CFS. By mobilizing insights from social epistemology and epistemic injustice studies, this paper reveals...
  8. Andy

    Prevalence and severity of symptoms 3 months after infection with SARS-CoV-2 .... in the Netherlands 2022 van der Maaden, Knoop et al

    Full title: Prevalence and severity of symptoms 3 months after infection with SARS-CoV-2 compared to test-negative and population controls in the Netherlands ABSTRACT Background This prospective study assesses symptoms three months after SARS-CoV-2-infection compared to test-negative and...
  9. Andy

    Persistence of somatic symptoms after COVID-19 in the Netherlands: an observational cohort study, 2022, Ballering et al

    Summary Background Patients often report various symptoms after recovery from acute COVID-19. Previous studies on post-COVID-19 condition have not corrected for the prevalence and severity of these common symptoms before COVID-19 and in populations without SARS-CoV-2 infection. We aimed to...
  10. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    "DUTCH ZONMW RESEARCH PROGRAMME LAUNCHED One of the topics discussed in News from the Netherlands in this issue is the approval of a 10 year Biomedical Research Program with a subsidy of € 28,5 million. Just before releasing this issue, Dutch ZonMW – who executes the programme and compiled its...
  11. Andy

    Social Challenge - An Initiative Of ME/CFS Foundation Netherlands And Helping Heroes.

    Summary: Young people with ME symptoms suffer from extreme fatigue. Many can’t participate in normal social life or go to school. This leads to isolation, discrimination and stigma of being lazy. Via our tool Illornotill.org they find out whether they might have ME/CFS to get help from their...
  12. Andy

    Development and User Experiences of a Biopsychosocial Interprofessional Online Course on Persistent Somatic Symptoms, 2021, Rosmalen et al

    Background: Communication between healthcare providers and patients with persistent somatic symptoms (PSS) is frequently hampered by mutual misunderstanding and dissatisfaction. Methods: We developed an online, interprofessional course to teach healthcare providers the knowledge, skills, and...
  13. Dolphin

    Dutch CFS/ME-clinic nominated to receive quackery award 2021

    From: Dr. Marc-Alexander Fluks A Dutch CFS/ME-clinic is one of the nominees to receive this year's quackery award. Translation from Dutch to English (see section 6 of the press release)...
  14. Andy

    Sex differences in the trajectories to diagnosis of patients presenting with common somatic symptoms in primary care..., 2021, Ballering et al

    Full title: Sex differences in the trajectories to diagnosis of patients presenting with common somatic symptoms in primary care: an observational cohort study Highlights • Sex differences exist in diagnostic trajectories of patients with somatic symptoms. • Men with somatic symptoms receive...
  15. C

    Learning to feel tired: A learning trajectory towards chronic fatigue, 2018, Lenaert et al.

    Abstract Chronic fatigue complaints are frequently reported in the general population and fatigue ranks among the most commonly reported symptoms in chronic disease. In contrast to its high prevalence and impact on quality of life, relatively little is understood about the etiology of chronic...
  16. ME/CFS Skeptic

    Still New Chronic Q Fever Cases Diagnosed 8 Years After a Large Q Fever Outbreak, 2021, Buijs et al.

    Abstract Background Chronic Q fever usually develops within 2 years after primary infection with Coxiella burnetii. We determined the interval between acute Q fever and diagnosis of chronic infection, assessed what factors contribute to a longer interval, and evaluated the long-term follow-up...
  17. Arvo

    The chronic fatigue syndrome; psychiatric aspects, 1991, K.E. Hawton et al.

    While researching the origins of the ideas regarding ME, I came across this paper. I'm going to post it in full, translated, because I think it's also a document of key importance for UK researchers interested in the history of the Wessely School's ideas about ME. It appeared in Nederlands...
  18. Andy

    Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process, 2021, Marjolein Lotte de Boer

    Abstract In healthcare settings, patient participation is increasingly adopted as a possible remedy to ill people suffering from ‘epistemic injustices’ – that is to their unfair harming as knowers. In exploring and interpreting patient participation discourses within the 2013–2018 Dutch Myalgic...
  19. Arvo

    Are there any studies that include bedbound CFS patiënts playing tennis within 6 months?

    Hello everyone, I'm doing some research which may or may not lead to writing an article. When reading old newspaper articles from The Netherlands, I came across a 2003 piece featuring Judith Prins and Gijs Bleijenberg. Apart from the usual tripe, they make the claim that due to their CBT...
  20. Hoopoe

    No signs of neuroinflammation in women with [CFS] or Q fever fatigue syndrome using the TSPO ligand [11C]-PK11195, 2021, Raijmakers, Knoop et al

    Abstract The pathophysiology of chronic fatigue syndrome (CFS) and Q fever fatigue syndrome (QFS) remains elusive. Recent data suggest a role for neuroinflammation as defined by increased expression of translocator protein (TSPO). In the present study we investigated neuroinflammation in female...
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