netherlands

Persistent Physical Symptoms Multidisciplinary Challenges , Saturday 15th June - Tuesday 18th June 2019 full details here: https://www.rug.nl/research/gradschool-medical-sciences/summerschools/persistent-physical-symptoms/ also at that link " The Summer School will take place in advance of...

You need to click on the "download" button and the translated letter will come up. https://translate.google.com/translate?sl=nl&tl=en&u=https%3A%2F%2Fwww.tweedekamer.nl%2Fkamerstukken%2Fbrieven_regering%2Fdetail%3Fid%3D2018Z23443%26did%3D2018D59089 Letter from the Minister for Medical Care...

English overview, http://www.steungroep.nl/images/her_keuring_WIA_of_WAO/Her_keuringen_algemeen/Summary Ervaringen met UWV150dpi.pdf Dutch full report...

The Netherlands – VGCt. Vereniging voor Gedragstherapie en Cognitieve Therapieën. Dutch Association for Behavioural and Cognitive Therapies, DABCT. James Coyne was invited to be on the Nov VGCt panel, but they then withdrew the offer.... the sound is not very good. eta: mentions the...

I was searching for CFS FITNET stuff, and found this: http://www.isrctn.com/ISRCTN12612526 All outcomes look like self report, and "The follow-up duration is four weeks and will be measured by weekly questionnaires and finished by a follow-up assessment." Four weeks is not long, and looks...

Quick and dirty (google) translation from: http://mecvs.nl/nieuws/richtlijn-cvs-uit-2013-geschrapt/ Following the recent Dutch Health Council opinion on ME / CFS: The "Nederlandse Huisartsengenootschap (NHG)" (The Dutch College of General Practitioners ) has removed the 2013 multidisciplinary...

Concept: Anil van der Zee Questions by: Roland Cheung, Celine Corsius, Lou Corsius, Mark Vink and Anil van der Zee Interviewer: Rogier Louwen Video, audio and editing: Willem Timmers

Bristol Randomised Trials Collaboration " The BRTC designs and conducts high quality pragmatic randomised controlled trials (RCTs) in primary and secondary care, as well as non-NHS settings such as schools and in public health. We also undertake complex trials and feasibility studies which...

Would someone who's on twitter please make this dutch journalist aware of... - the S4ME PACE briefing paper: https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/#post-55894 - Graham's video...

https://mecentraal.wordpress.com/2018/07/17/open-letter-74-international-experts-urge-dutch-minister-of-health-to-make-substantial-long-term-investment-in-biomedical-research/

http://psycnet.apa.org/record/2018-23402-001 Is fatigue a disease-specific or generic symptom in chronic medical conditions? Journal Article Database: PsycARTICLES Menting, Juliane Tack, Cees J. Bleijenberg, Gijs Donders, Rogier Droogleever Fortuyn, Hal A. Fransen, Jaap...

http://www.mdpi.com/2075-4418/8/2/34

This was stunning!! Nederlands Dans Theater (NDT) on Facebook: Anil van der Zee is a former professional (ballet) dancer, who suffers from Myalgic Encephalomyelitis (ME). ME is a debilitating neuroimmune disease affecting 17 million children and adults worldwide. NDT supports Anil’s mission to...

Copied direct from message to another ME group: The Dutch CFS-report was published today. Report (Dutch) https://www.gezondheidsraad.nl/sites/default/files/grpublication/kernadvies_me_cvs.pdf Background (Dutch)...

Tomorrow at 20:00 on the "NOS Journaal" (dutch national news): An item on ME/CFS as the Dutch Health Council will publish their long awaited advice/guidelines on ME/CFS tomorrow. Also a radio item on this tomorrow morning between 06:00 and 09:30 on NPO1-radio, I have not yet found the exact...

Trial By Error: The Dutch Review; My Trip; Bristol's Silence

The Dutch organisation ME/CVS Vereniging has translated into English a recount from an ME-patient about a stay in a Dutch rehabilitation centre 15 years ago. The patient is still struggling with consequences of that horrible stay.

After the promising radio interview yesterday, with one of the documentary makers and the father of an ME patient (https://www.nporadio1.nl/radio-focus/onderwerpen/445612-onverklaarbaar-oververmoeid) Dutch transcript from radio interview on https://corsius.wordpress.com/ English transcript...

In the Netherlands I know of only 1 ME / POTS / Fybro specialist. His name is Professor Dr. Frans Visser. His clinic is called Stichting Cardiozorg. He is a professor in cardiology and has specialised in ME and POTS. He was the first to diagnose me correctly with ME and POTS. Google translated...