netherlands

  1. M

    Dutch College of GP's removed ME-CFS guidelines from its website

    Quick and dirty (google) translation from: http://mecvs.nl/nieuws/richtlijn-cvs-uit-2013-geschrapt/ Following the recent Dutch Health Council opinion on ME / CFS: The "Nederlandse Huisartsengenootschap (NHG)" (The Dutch College of General Practitioners ) has removed the 2013 multidisciplinary...
  2. Kalliope

    YouTube: David "PACEman" Tuller in Amsterdam 2018

    Concept: Anil van der Zee Questions by: Roland Cheung, Celine Corsius, Lou Corsius, Mark Vink and Anil van der Zee Interviewer: Rogier Louwen Video, audio and editing: Willem Timmers
  3. Sly Saint

    Bristol Randomised Trials Collaboration

    Bristol Randomised Trials Collaboration " The BRTC designs and conducts high quality pragmatic randomised controlled trials (RCTs) in primary and secondary care, as well as non-NHS settings such as schools and in public health. We also undertake complex trials and feasibility studies which...
  4. MSEsperanza

    Dutch journalist asks about pwME's objection to CBT/GET

    Would someone who's on twitter please make this dutch journalist aware of... - the S4ME PACE briefing paper: https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/#post-55894 - Graham's video...
  5. Andy

    Open Letter: 74 International experts urge Dutch Minister of Health to make substantial long term investment in biomedical research

    https://mecentraal.wordpress.com/2018/07/17/open-letter-74-international-experts-urge-dutch-minister-of-health-to-make-substantial-long-term-investment-in-biomedical-research/
  6. Dolphin

    "Is fatigue a disease-specific or generic symptom in chronic medical conditions?" (Dutch CBT proponents involved)

    http://psycnet.apa.org/record/2018-23402-001 Is fatigue a disease-specific or generic symptom in chronic medical conditions? Journal Article Database: PsycARTICLES Menting, Juliane Tack, Cees J. Bleijenberg, Gijs Donders, Rogier Droogleever Fortuyn, Hal A. Fransen, Jaap...
  7. Kalliope

    Nederlands Dans Theater with video dedicated ME-patients everywhere

    This was stunning!! Nederlands Dans Theater (NDT) on Facebook: Anil van der Zee is a former professional (ballet) dancer, who suffers from Myalgic Encephalomyelitis (ME). ME is a debilitating neuroimmune disease affecting 17 million children and adults worldwide. NDT supports Anil’s mission to...
  8. MeSci

    Dutch ME/CFS Report with translations

    Copied direct from message to another ME group: The Dutch CFS-report was published today. Report (Dutch) https://www.gezondheidsraad.nl/sites/default/files/grpublication/kernadvies_me_cvs.pdf Background (Dutch)...
  9. M

    Dutch Health Council on ME/CFS tomorrow on national news

    Tomorrow at 20:00 on the "NOS Journaal" (dutch national news): An item on ME/CFS as the Dutch Health Council will publish their long awaited advice/guidelines on ME/CFS tomorrow. Also a radio item on this tomorrow morning between 06:00 and 09:30 on NPO1-radio, I have not yet found the exact...
  10. Kalliope

    David Tuller - Trial By Error: The Dutch Review; My Trip; Bristol's Silence

    Trial By Error: The Dutch Review; My Trip; Bristol's Silence
  11. Kalliope

    ME/CVS Vereniging: shocking story about the (mal)treatment of an ME/CFS-patient

    The Dutch organisation ME/CVS Vereniging has translated into English a recount from an ME-patient about a stay in a Dutch rehabilitation centre 15 years ago. The patient is still struggling with consequences of that horrible stay.
  12. M

    Tonight on Dutch TV - ME / CFS documentary

    After the promising radio interview yesterday, with one of the documentary makers and the father of an ME patient (https://www.nporadio1.nl/radio-focus/onderwerpen/445612-onverklaarbaar-oververmoeid) Dutch transcript from radio interview on https://corsius.wordpress.com/ English transcript...
  13. M

    Dutch ME / POTS specialist under attack

    In the Netherlands I know of only 1 ME / POTS / Fybro specialist. His name is Professor Dr. Frans Visser. His clinic is called Stichting Cardiozorg. He is a professor in cardiology and has specialised in ME and POTS. He was the first to diagnose me correctly with ME and POTS. Google translated...
  14. Sly Saint

    Netherlands - Women in science are missing out on dozens of millions of euros

    "Currently, 11 percent of EUR’s professors are female. Women are still underrepresented in the top echelons of science. As a result, they miss out on up to €200 million, according to the annual monitor published by the Dutch Network of Women Professors."...
  15. F

    Analysis of five hallmark studies from the Netherlands, 2018, Twisk and Corsius

    An in-depth analysis of five hallmark studies of the Dutch Expertise Center for Chronic Fatigue (NKCV) confirms that cognitive behavorial therapy combined with a graded activity protocol (CBT+) has no objective positive effect on the (health) status of patients diganosed with chronic fatigue...
  16. Esther12

    Chronic fatigue syndrome (CFS/ME) symptom-based phenotypes & 1-year treatment outcomes in two clinical cohorts of adult patients.., 2017, Collin et al

    http://www.jpsychores.com/article/S0022-3999(17)30841-3/pdf posted by @Sly Saint in another thread, so it's getting it's own thread here.
  17. Cheshire

    Coyne: No, seats on the US Institute of Medicine advisory commitees are not for sale, despite what the Dutch Parliament was told

    by James C Coyne November 16, 2017 https://www.coyneoftherealm.com/blogs/news/no-seats-on-the-us-institute-of-medicine-advisory-commitees-are-not-for-sale-despite-what-the-dutch-parliament-was-told
  18. Sasha

    Friday 10 Nov, 7:10 pm (UK time): Livestream of Netherlands showing of Unrest Q&A with David Tuller, Charles Shepherd

    From another thread: I think that 8:10 pm in the Netherlands is 7:10 pm in the UK.
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