Quick and dirty (google) translation from:
http://mecvs.nl/nieuws/richtlijn-cvs-uit-2013-geschrapt/
Following the recent Dutch Health Council opinion on ME / CFS:
The "Nederlandse Huisartsengenootschap (NHG)" (The Dutch College of General Practitioners ) has removed the 2013 multidisciplinary...
Concept: Anil van der Zee
Questions by: Roland Cheung, Celine Corsius, Lou Corsius, Mark Vink and Anil van der Zee Interviewer: Rogier Louwen
Video, audio and editing: Willem Timmers
Bristol Randomised Trials Collaboration
"
The BRTC designs and conducts high quality pragmatic randomised controlled trials (RCTs) in primary and secondary care, as well as non-NHS settings such as schools and in public health. We also undertake complex trials and feasibility studies which...
Would someone who's on twitter please make this dutch journalist aware of...
- the S4ME PACE briefing paper: https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/#post-55894
- Graham's video...
http://psycnet.apa.org/record/2018-23402-001
Is fatigue a disease-specific or generic symptom in chronic medical conditions?
Journal Article
Database: PsycARTICLES
Menting, Juliane Tack, Cees J. Bleijenberg, Gijs Donders, Rogier Droogleever Fortuyn, Hal A. Fransen, Jaap...
This was stunning!!
Nederlands Dans Theater (NDT) on Facebook:
Anil van der Zee is a former professional (ballet) dancer, who suffers from Myalgic Encephalomyelitis (ME). ME is a debilitating neuroimmune disease affecting 17 million children and adults worldwide. NDT supports Anil’s mission to...
Copied direct from message to another ME group:
The Dutch CFS-report was published today.
Report (Dutch)
https://www.gezondheidsraad.nl/sites/default/files/grpublication/kernadvies_me_cvs.pdf
Background (Dutch)...
Tomorrow at 20:00 on the "NOS Journaal" (dutch national news):
An item on ME/CFS as the Dutch Health Council will publish their long awaited advice/guidelines on ME/CFS tomorrow. Also a radio item on this tomorrow morning between 06:00 and 09:30 on NPO1-radio, I have not yet found the exact...
The Dutch organisation ME/CVS Vereniging has translated into English a recount from an ME-patient about a stay in a Dutch rehabilitation centre 15 years ago. The patient is still struggling with consequences of that horrible stay.
After the promising radio interview yesterday, with one of the documentary makers and the father of an ME patient (https://www.nporadio1.nl/radio-focus/onderwerpen/445612-onverklaarbaar-oververmoeid)
Dutch transcript from radio interview on https://corsius.wordpress.com/
English transcript...
In the Netherlands I know of only 1 ME / POTS / Fybro specialist.
His name is Professor Dr. Frans Visser. His clinic is called Stichting Cardiozorg.
He is a professor in cardiology and has specialised in ME and POTS.
He was the first to diagnose me correctly with ME and POTS.
Google translated...
"Currently, 11 percent of EUR’s professors are female.
Women are still underrepresented in the top echelons of science. As a result, they miss out on up to €200 million, according to the annual monitor published by the Dutch Network of Women Professors."...
An in-depth analysis of five hallmark studies of
the Dutch Expertise Center for Chronic Fatigue (NKCV) confirms that
cognitive behavorial therapy combined with a graded activity protocol (CBT+)
has no objective positive effect on the (health) status of
patients diganosed with chronic fatigue...
by James C Coyne November 16, 2017
https://www.coyneoftherealm.com/blogs/news/no-seats-on-the-us-institute-of-medicine-advisory-commitees-are-not-for-sale-despite-what-the-dutch-parliament-was-told
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.