netherlands

  1. Sly Saint

    Recursive ensemble feature selection provides a robust mRNA expression signature for ME/CFS, 2021, Metselaar et al

    Recursive ensemble feature selection provides a robust mRNA expression signature for myalgic encephalomyelitis/chronic fatigue syndrome https://www.nature.com/articles/s41598-021-83660-9
  2. Dolphin

    Impact of Q-fever fatigue syndrome on patients’ work status, 2020, Reukers et al

    Free full text: https://academic.oup.com/occmed/advance-article/doi/10.1093/occmed/kqaa166/5929827 Impact of Q-fever fatigue syndrome on patients’ work status D F M Reukers, J A F van Loenhout, I Roof, T F Senden, S P Keijmel, C P Bleeker-Rovers, C H M van Jaarsveld, J L A Hautvast, K van der...
  3. Andy

    Netherlands: Revision of guideline on Q fever fatigue syndrome (QFS), 2020, Keijmel et al

    Pubmed link only, https://pubmed.ncbi.nlm.nih.gov/32073803/
  4. Andy

    Prognostic Factors for Staying at Work for Partially Sick-Listed Workers with Subjective Health Complaints: A Prospective Cohort Study, 2020, Anema et

    Open access, https://www.mdpi.com/1660-4601/17/19/7184/htm My bolding.
  5. Andy

    Short fatigue questionnaire: Screening for severe fatigue, 2020, Knoop et al

    Open access, https://www.sciencedirect.com/science/article/pii/S0022399920307911
  6. Grigor

    Post-covid: ME/CFS revisited

    Dr. Jim Faas insurance physician and former chairman of the Dutch Association for Insurance Medicine, has written a blog about #LongCovid, CBT and ME. Mark Vink and I secretly helped tweaking it a bit. Really very brave of him that he dares to put this subject on this prominent medical website...
  7. Dolphin

    ETUDE: Encompassing Training in fUnctional Disorders across Europe

    Dutch study on functional complaints (including CFS) receives €4 million in European funding "Some people particularly benefit from physical therapy, while others are more in need of support from a psychologist." https://www.dvhn.nl/groningen/Als-de-dokter-niks-kan-vinden-25856002.html...
  8. ME/CFS Skeptic

    News from The Netherlands

    I thought it might be useful to have a thread on ME/CFS news for the Netherlands, similar to the threads we have on Scandinavian countries. If there's some really important news we could make a separate thread for it and link to it in this general thread that keeps an overview of all ME/CFS...
  9. Andy

    Europe: European ME Alliance (EMEA) (also EMECC and EMERG)

    Note from Moderators: IiME created the EMEA, and also the EMECC (Clinicians Council) and the EMERG (Research Group). The EMEA is a member of EFNA (the European Federation of Neurological Associations). A number of threads have been merged to create this thread. ******************** Invest...
  10. Sly Saint

    Ambulatory activity-based feedback (ABF) : (Netherlands) 2008 - 2011

    I came across this on the Cochrane Central Database but cannot find any publication. Original Title: Optimalization of Cognitive Behavioral Therapy (CBT) for CFS patients in rehabilitation by means of ambulatory activity‐based feedback (ABF) ‐ Ambulatory activity‐based feedback (ABF)...
  11. John Mac

    Correction: CFS/ME is different in children compared to in adults: a study of UK and Dutch clinical cohorts. 2019

    A correction has appeared in BMJ Open for a UK/Dutch study published in 2015. Esther Crawley was one of the original studies authors. https://bmjopen.bmj.com/content/9/11/e008830corr1 The original 2015 study: https://bmjopen.bmj.com/content/5/10/e008830
  12. ME/CFS Skeptic

    Patient survey by the Dutch ME/CFS Association - Corsius et al. 2019

    Corsius et al. (2019). Zorg voor betere behandeling bij ME. Enquête onder ME-patiënten naar hun ervaringen met behandelingen bij ME. A new patient survey was published two days ago by the Dutch ME/CFS Association (ME/CVS Vereniging). It was conducted online in 2017 and had valid results for...
  13. Grigor

    Dutch TV psychiatrists critique PACE

    Hi everyone, A prominent Dutch psychiatrist Bram Bakker has written a book where he published a critical chapter about PACE, CBT/GET and pro Mark Vink. I can't post the whole chapter here but it would be great if you could help me retweet the quote I posted so it gets the attention it needs...
  14. Andy

    Prevalence of post-concussion-like symptoms in the general population in Italy, The Netherlands and the United Kingdom, 2019, Voormolen et al

    Open access at https://www.tandfonline.com/doi/full/10.1080/02699052.2019.1607557 The authors claim they are looking at post-concussion syndrome yet So when they report that from this list of symptoms I expect that they are re-labelling people who have an assortment of conditions...
  15. Andy

    A Glorious Moment for the Dutch Government to Step Up to the Plate

    https://www.meaction.net/2019/03/20/a-glorious-moment-for-the-dutch-government-to-step-up-to-the-plate/
  16. Sly Saint

    Summer School Persistent Physical Symptoms - Netherlands 15th-18th June

    Persistent Physical Symptoms Multidisciplinary Challenges , Saturday 15th June - Tuesday 18th June 2019 full details here: https://www.rug.nl/research/gradschool-medical-sciences/summerschools/persistent-physical-symptoms/ also at that link " The Summer School will take place in advance of...
  17. Daisymay

    Dutch Minister of Care letter to Parliament re ME/CFS

    You need to click on the "download" button and the translated letter will come up. https://translate.google.com/translate?sl=nl&tl=en&u=https%3A%2F%2Fwww.tweedekamer.nl%2Fkamerstukken%2Fbrieven_regering%2Fdetail%3Fid%3D2018Z23443%26did%3D2018D59089 Letter from the Minister for Medical Care...
  18. Andy

    Dutch Patient Survey: Experiences of ME patients with disability assessments by UWV

    English overview, http://www.steungroep.nl/images/her_keuring_WIA_of_WAO/Her_keuringen_algemeen/Summary Ervaringen met UWV150dpi.pdf Dutch full report...
  19. Sly Saint

    James Coyne 15 11 2018 What the VGCT congress did not hear - presentation in Netherlands

    The Netherlands – VGCt. Vereniging voor Gedragstherapie en Cognitieve Therapieën. Dutch Association for Behavioural and Cognitive Therapies, DABCT. James Coyne was invited to be on the Nov VGCt panel, but they then withdrew the offer.... the sound is not very good. eta: mentions the...
  20. Esther12

    [Just a registration] Paediatric immune dysregulation disorders - FITNET plus from Elise van de Putte ISRCTN12612526

    I was searching for CFS FITNET stuff, and found this: http://www.isrctn.com/ISRCTN12612526 All outcomes look like self report, and "The follow-up duration is four weeks and will be measured by weekly questionnaires and finished by a follow-up assessment." Four weeks is not long, and looks...
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