nice

Abstract The British National Institute for Health and Care Excellence (NICE) published its updated guidelines for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in October 2021. NICE concluded, after an extensive review of the literature, that graded exercise therapy (GET) is...

Appraisal of Clinical Practice Guideline: National Institute for Health and Care Excellence NICE clinical practice guideline for myalgic encephalomyelitis or encephalopathy/chronic fatigue syndrome: diagnosis and management Sarah F Tyson Commentary. No abstract. Link | PDF (Journal of...

NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence Peter Walter Barry; Kate Kelley; Toni Tan; Ilora Finlay In 2021, the National Institute for Health and Care Excellence produced an evidence-based guideline on the diagnosis and management of myalgic...

NICE Draft guidelines for Vitamin B12 Deficiency out for consultation Guideline webpage : https://www.nice.org.uk/guidance/indevelopment/gid-ng10176 Expected publication date: 16 January 2024 Vitamin B12 deficiency in over 16s: diagnosis and management

Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis Peter White, Susan Abbey, Brian Angus, Harriet A Ball, Dedra S Buchwald, Christine Burness, Alan J Carson, Trudie Chalder, Daniel J Clauw, Jan...

I've written some of my thoughts about the new reports and guidelines on ME/CFS that have been published over the past 5 years. They seem to form a new consensus, one where PEM is a required criterium for ME/CFS, where GET is no longer recommended and CBT is proposed as a supportive treatment...

After an appeal by Janssen (the pharmaceutical company that manufactures esketamine) in July, NICE reviewed the evidence they submitted again in a technology appraisal guidance (TAG) and recommended against its use for treatment-resistant depression. The TAG committee’s discussion is an...

World EBHC Day launches campaign to address global health challenges through partnerships for purpose https://www.cochrane.org/news/world-ebhc-day-launches-campaign-address-global-health-challenges-through-partnerships-purpose

https://www.bbc.co.uk/news/health-61255733 Seems that overnight the draft updated NICE guideline for osteoarthritis was published: https://www.nice.org.uk/guidance/indevelopment/gid-ng10127 I'm getting terrible flashbacks of this time last year.

Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread. Dear Jonathan Further to the email sent last week, please find attached the draft implementation statement in support of our guidance on the diagnosis and management of myalgic...

In my attempts to help my GP help me, I came across a NICE Evidence page outrightly calling ME a physical illness with information on identifying and managing the symptoms. https://www.evidence.nhs.uk/document?id=2193067&returnUrl=search?q=myalgic+encephalomyelitis...

https://www.rcpch.ac.uk/resources/me-cfs-nice-clinical-guideline-member-briefing

NOT a recent FOI but from 2015 following the IOM report; many familiar names, thought it might be of interest here. https://www.whatdotheyknow.com/request/357691/response/883778/attach/2/FOI%20EH73066%20Redacted%20documents%20for%20release.pdf

I thought it might be useful for us to get to grips with this issue. The GET defenders have said that NICE chose the trial endpoints it looked at incorrectly. As I understand it, NICE chose the longest followup points where possible, and in the case of PACE, that was 135 weeks. The GET...

Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS guideline draft, which also include responses from NICE. The submissions were made by stakeholders in December 2020. These tables with both the...

This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and other organisations' press releases. The NICE ME/CFS Guideline Project documents page gives links to: the Final Guideline the Evidence Review the...

"Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome – Baroness Thornton Oral questions" https://www.theyworkforyou.com/calendar/?d=2021-10-12#cal35881 (don't have any more details)

rest of article here https://www.wired-gov.net/wg/news.nsf/articles/nice+and+cochrane+sign+collaborative+agreement+to+deliver+living+guideline+recommendations+01092021120500?open

The following letter was sent by email by the S4ME management committee to NICE to express our concerns and ask for clarifications about the 'pause' they announced to publication of the final version of the ME/CFS guideline. * a few words have been removed from this copy which refer to sections...

https://www.theguardian.com/society/2021/aug/30/withdrawal-planned-guidance-me-leaves-patients-distraught Natalie Grover seems to be getting nearer to understanding the problem, even if still a little way away. Some reasonable quotes from me. Some from Sharpe and Chalder as well.