nice

"Introduction Please complete this short survey to help us improve how we write and present our guidance. Your feedback is key to help us ensure our guidance is useful, useable and used. We think it will take you around 15 minutes to complete."...

"We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. People with ME are depending on the finalised guideline to transform the care they receive: ensuring accurate diagnosis, appropriate symptom management, and...

https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/ This has been posted already, but I thought deserves its own thread. All points I think still essentially apply during the new guideline is paused.

OFFICIAL PARTNERS incl Cochrane and NICE. https://worldebhcday.org/

"This guideline covers how to make shared decision making part of everyday care in all healthcare settings. It promotes ways for healthcare professionals and people using services to work together to make decisions about treatment and care. It includes recommendations on training, communicating...

Moved from this thread It was suggested yesterday that this Member of the House of Lords local to me is joining Forward ME? She has been asking pertinent questions.... Baroness Scott of Needham Market Liberal Democrat To ask Her Majesty's Government why Chronic Fatigue Syndrome (CFS)...

I imagine there is supposed to be a point somewhere in there but all I read is people saying if they had been tasked with it they would have done it differently because they don't like the outcome it gave without being there to change it to their preference. No substantial argument other than...

https://www.nice.org.uk/news/events/5-year-strategy-virtual-event-launch

An email from NICE has highlighted that they are developing a guideline on Rehabilitation for Chronic Neurological Disorders Including Traumatic Brain Injury. In theory, NICE, rightly or wrongly, recognise ME as a neurological condition, so I would assume that ME will be included in this...

Split from: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 Updated NICE guidance on chronic fatigue syndrome https://www.bmj.com/content/371/bmj.m4774.full

Moved from this thread: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 Physios for ME View on NICE Guidelines https://www.physiosforme.com/post/physios-for-me-view-on-nice-guidelines

Here is the Science for ME submission to NICE (The UK National Institute for Health and Care Excellence) consultation on its draft guideline: ME/CFS: diagnosis and management The following posts were copied to the NICE template and submitted on 20th December 2020. A PDF version of the...

I posted this on another thread NHS site on MUS: https://www.nhs.uk/conditions/medically-unexplained-symptoms/ NICE: https://www.evidence.nhs.uk/search?q=medically+unexplained+symptoms one listing at last link...

Thought it could be helpful to have a thread on Jonathan's expert testimony for any further use and citation. Edwards, Jonathan CW (2020), The difficulties of conducting intervention trials for the treatment of myalgic encephalomyelitis/chronic fatigue syndrome: Expert testimony presented to...

Here's the link to the draft guideline and associated documents: Draft guideline document https://www.nice.org.uk/guidance/gid-ng10091/documents/draft-guideline Also Evidence review A - Information for people with ME/ CFS Evidence review B - Information for health and social care...

I'm not sure where to post this but want to highlight for those giving input/feedback on NICE guidelines a discussion in a BMJ Live LongCovid rehabilitation event that relates to the characterization of CFS and the NICE guidelines. The presenter was Professor Lynne Turner-Stokes of Kings College...

Moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid _________________ https://www.nice.org.uk/news/article/nice-sign-announce-latest-rapid-covid-19-guideline-will-address-long-covid NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid NICE and...

http://www.pulsetoday.co.uk/news/gps-should-not-prescribe-opioids-for-chronic-pain-says-nice/20041262.article I've not been impressed by the evidence that painkillers improve outcomes over the long-term for chronic pain, but I also think it's important that it's patients themselves who get to...

https://www.meaction.net/2020/07/15/take-action-graded-exercise-harming-people-with-me-and-covid-long-haulers/

https://www.nice.org.uk/guidance/gid-ng10091/documents/interim-findings-2 "NICE is aware of concerns about graded exercise therapy (GET) for people who are recovering from COVID-19. NICE’s guideline on ME/CFS (CG53) was published in 2007, many years before the current pandemic and it should not...