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  1. Andy
    Thread

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    "We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. People...
    Thread by: Andy, Aug 19, 2021, 87 replies, in forum: Petitions
  2. MSEsperanza
    Thread

    The new NICE Guideline for ME/CFS: Ten Questions Answered (Brian Hughes)

    https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/ This has been posted already, but I thought...
    Thread by: MSEsperanza, Aug 18, 2021, 1 replies, in forum: 2020 UK NICE ME/CFS Guideline
  3. Sly Saint
    Thread

    WORLD EVIDENCE-BASED HEALTHCARE DAY 20 October 2021

    2021 CAMPAIGN: THE ROLE OF EVIDENCE IN AN INFODEMIC Building on the collective wisdom of using evidence to generate impact in 2020, the campaign...
    Thread by: Sly Saint, Aug 12, 2021, 4 replies, in forum: Research methodology news and research
  4. Andy
    Thread

    UK: NICE Guideline: Shared decision making, published June 2021

    "This guideline covers how to make shared decision making part of everyday care in all healthcare settings. It promotes ways for healthcare...
    Thread by: Andy, Jun 18, 2021, 22 replies, in forum: Other guidelines
  5. Suffolkres
    Thread

    NICE Health topics: Tiredness/Fatigue in adults (includes CFS).

    Moved from this thread It was suggested yesterday that this Member of the House of Lords local to me is joining Forward ME? She has been...
    Thread by: Suffolkres, Apr 7, 2021, 89 replies, in forum: 2020 UK NICE ME/CFS Guideline
  6. rvallee
    Thread

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I imagine there is supposed to be a point somewhere in there but all I read is people saying if they had been tasked with it they would have done...
    Thread by: rvallee, Feb 25, 2021, 286 replies, in forum: 2020 UK NICE ME/CFS Guideline
  7. Andy
    Thread

    United Kingdom: NICE National Institute for Health and Care Excellence

    Join us for the launch of our bold and ambitious new strategy. At the event, you'll hear directly from our leadership team. They'll be discussing...
    Thread by: Andy, Feb 15, 2021, 12 replies, in forum: News from organisations
  8. Andy
    Thread

    UK: NICE Guideline: Rehabilitation for Chronic Neurological Disorders Including Traumatic Brain Injury

    An email from NICE has highlighted that they are developing a guideline on Rehabilitation for Chronic Neurological Disorders Including Traumatic...
    Thread by: Andy, Jan 5, 2021, 42 replies, in forum: Other guidelines
  9. John Mac
    Thread

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    Split from: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 Updated NICE guidance on chronic fatigue syndrome...
    Thread by: John Mac, Dec 16, 2020, 139 replies, in forum: 2020 UK NICE ME/CFS Guideline
  10. Andy
    Thread

    NICE ME/CFS guideline - submissions to the draft guideline consultation, December 2020

    Moved from this thread: NICE ME/CFS guideline - draft published for consultation - 10th November 2020 Physios for ME View on NICE Guidelines...
    Thread by: Andy, Dec 16, 2020, 15 replies, in forum: 2020 UK NICE ME/CFS Guideline
  11. Science For ME
    Thread

    Science for ME submission to the NICE draft ME/CFS guideline consultation, December 2020, and submission on substantive errors, August 2021

    Here is the Science for ME submission to NICE (The UK National Institute for Health and Care Excellence) consultation on its draft guideline:...
    Thread by: Science For ME, Dec 15, 2020, 72 replies, in forum: 2020 UK NICE ME/CFS Guideline
  12. Sly Saint
    Thread

    'Medically unexplained symptoms' (MUS, PPS, SSD) : Time for NICE to review the 'evidence'?

    I posted this on another thread That is the fundamental assumption at the heart of the PPS/MUS model: that all of the conditions categorised as...
    Thread by: Sly Saint, Nov 22, 2020, 4 replies, in forum: General Advocacy Discussions
  13. MSEsperanza
    Thread

    The difficulties of conducting intervention trials for the treatment of [ME/CFS]: Expert testimony to NICE guidelines committee by Jonathan Edwards

    Thought it could be helpful to have a thread on Jonathan's expert testimony for any further use and citation. Edwards, Jonathan CW (2020), The...
    Thread by: MSEsperanza, Nov 12, 2020, 25 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Science For ME
    Thread

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Here's the link to the draft guideline and associated documents: Draft guideline document...
    Thread by: Science For ME, Nov 9, 2020, 1,234 replies, in forum: 2020 UK NICE ME/CFS Guideline
  15. Medfeb
    Thread

    UK: NICE Longcovid guideline 2020

    I'm not sure where to post this but want to highlight for those giving input/feedback on NICE guidelines a discussion in a BMJ Live LongCovid...
    Thread by: Medfeb, Oct 18, 2020, 86 replies, in forum: 2020 UK NICE Long Covid Guideline
  16. Dx Revision Watch
    Thread

    UK - NICE guideline on Long Covid

    Moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid _________________...
    Thread by: Dx Revision Watch, Oct 5, 2020, 183 replies, in forum: 2020 UK NICE Long Covid Guideline
  17. Esther12
    Thread

    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    http://www.pulsetoday.co.uk/news/gps-should-not-prescribe-opioids-for-chronic-pain-says-nice/20041262.article The first-ever NICE guideline on...
    Thread by: Esther12, Aug 3, 2020, 175 replies, in forum: Other guidelines
  18. Hoopoe
    Thread

    MEAction UK has sent an open letter to Matt Hancock asking him to recognise the harm caused by GET

    Please email your MP and ask them to write to Matt Hancock, Secretary of State for Health and Social Care calling on him to: Request NICE adds...
    Thread by: Hoopoe, Jul 15, 2020, 6 replies, in forum: General ME/CFS news
  19. InitialConditions
    Thread

    NICE Statement about graded exercise therapy in the context of COVID-19

    https://www.nice.org.uk/guidance/gid-ng10091/documents/interim-findings-2 "NICE is aware of concerns about graded exercise therapy (GET) for...
    Thread by: InitialConditions, Jul 11, 2020, 163 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  20. lycaena
    Thread

    Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation?

    This post and some of the following posts have been moved from this thread: NICE delay publication till 9 dec 2020. Draft guideline consultation...
    Thread by: lycaena, May 5, 2020, 19 replies, in forum: Advocacy Projects and Campaigns
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