nice

This post and some of the following posts have been moved from this thread: NICE delay publication till 9 dec 2020. Draft guideline consultation closing August.

http://cepuk.org/2020/02/08/guest-blog-nice-depression-guideline-cautious-optimism/?fbclid=IwAR1c2BN81TyQ79EjH8IYSjTeztHESk1i7rP3-GmiJJDLLH3HDrNlaxR8M2c

#MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They are collecting comments and signatures regarding the NICE (National Institute for Health and Care Excellence) ME/CFS treatment guidelines in the UK...

MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a link to the full report on the forum but just in case, it can be found here...

https://www.nice.org.uk/guidance/indevelopment/gid-ng10091

Survey, https://apps.mhs.manchester.ac.uk/surveys/TakeSurvey.aspx?PageNumber=1&SurveyID=m4KKln9MH&Preview=true Participant Information Sheet, https://www.research.manchester.ac.uk/portal/files/145778415/Our_PIS_GDPR_UoM_oct_1_verion.pdf

I've started this thread for discussions regarding the methodological issues and efficacy of the IAPT treatment model. In particular the move to treat 'CFS/ME' as a MUS that can be referred for IAPT CBT/GET treatment is now highly relevant to the ME/CFS NICE guideline.

Just received the following email Dear registered stakeholder, RE: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome We need more information to help us develop this NICE guideline. We invite registered stakeholders, and other individuals and...

Moderator note: Copied from thread here https://www.s4me.info/threads/uk-stop-graded-exercise-therapy-for-me-cfs.1301/#post-195995 https://www.meaction.net/2019/08/27/nice-drag-their-feet-on-stopping-the-harm-caused-by-get-and-cbt/

https://www.theguardian.com/society/2019/aug/08/watchdog-declines-to-back-nhs-cannabis-treatment-for-epilepsy There seem to be some worrying parallels with Nice’s review of guidelines for ME. If only clinical trials are considered as evidence, where do we stand? Also if the guidelines committee...

** Sorry - I made a significant error in this post. Please see my correction a few posts below... ** These recently developed (2019) flow charts based on the existing NICE CFS/ME guidelines were brought to my attention by a friend and I am just checking round to see if people are aware of their...

The Royal College of General Practioners (RCGP) is having its Presidential election soon. https://www.rcgp.org.uk/about-us/news/2019/may/rcgp-announces-seven-candidates-for-college-president.aspx There are 7 candidates... Could we canvas & lobby the the candidates for their views on matters...

The committee member list PDF was recently updated (9th May). There are numerous additions from the last copy that I have. GP - Chris Burton Dietician - Jenifer McIntosh Nurse - Caroline Kingdon Physician - Gabrielle Murphy Physician - William Weir Community Paediatrician - Alan Stanton...

Suspected neurological conditions: recognition and referral NICE guideline [NG127] Published date: May 2019 https://www.nice.org.uk/guidance/ng127# Full Guideline PDF: https://www.nice.org.uk/guidance/ng127/evidence/full-guideline-pdf-6775582573 Appendices A–R May 2019...

Moderator note: This post has been moved from this thread Why Sir Andrew Dillon MUST be challenged as must NICE in their new ME Guidelines .......... Contaminated Blood/worst treatment disaster in the history of the NHS yet a public inquiry has taken 30 years to take place. Lack of continued...

The minutes for the first Guideline Committee meeting have been published: [PDF]: https://www.nice.org.uk/guidance/gid-ng10091/documents/minutes Link to documents page: https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents

The Register of Interests for the NICE Guideline Committee has been published. [PDF] https://www.nice.org.uk/guidance/gid-ng10091/documents/register-of-interests Link to documents page: https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents

https://www.rcplondon.ac.uk/ngc-guideline-development

ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019 https://www.meassociation.org.uk/2019/04/forward-me-and-oxford-brookes-university-announce-results-of-patient-survey-on-cbt-and-get-in-me-cfs-03-april-2019/ Lady...

the problem of lack of recording of harms again a problem https://www.itv.com/news/anglia/2019-04-02/were-absolutely-appalled-say-mesh-campaigners-over-nice-decision/ (the story is also in various papers) see also this thread...