Title pretty much explains it. What information and/or statistics can you suggest that might be useful in interesting people outside of the ME...
Title pretty much says it all, or perhaps another way of asking the question is "What would be the ideal way that researchers could accommodate...
I have fibromyalgia, a condition that causes chronic pain and fatigue, along with a laundry list of associated conditions. Once, I went to a...
https://blogs.bmj.com/bmj/2019/02/08/hilde-t-myrhaug-and-tone-hansen-co-producing-a-systematic-review-with-patients/ At least I wanted the...
Source: ACM CHI Conference on Human Factors in Computing Systems 2019 Date: May 4-9, 2019 URL:...
I'm posting this in case there are Cdn advocates here who are not aware of this group and who might find connecting with this group of possible...
Interesting feature on a topical issue. It's getting easier for patients that participates in clinical trials to connect online and share...
The New Age of Patient Autonomy Implications for the Patient-Physician Relationship https://jamanetwork.com/journals/jama/fullarticle/2707954 The...
Paul Wicks, Tessa Richards, Simon Denegri and Fiona Godlee: Patient's roles and rights in research Critical voices, including some patient...
This may be done elsewhere on the site, but I thought it would be interesting to see what research patients would like to see. Perhaps if there...
I delivered these comments via telephone today at the CFS Advisory Committee meeting: My name is Jennifer Spotila. I will soon begin my 25th year...
COMAR is the BMA's policy forum for medical academics. We welcome doctors engaged in medical research and medical education in higher education...
Common misunderstandings are a barrier to real progress The term “patient” no longer denotes a passive recipient of healthcare. Patients have...
One of my passions is engaging people with ME in research, and especially as more than just subjects of the research. That’s why I co-authored a...
I came across this & found it interesting. "So my talk today is not about the importance of patient engagement in research. Rather, I’m...
While the UK BPS school seem to push a narrative of vexatious, dangerous patients, other scientists have praised PWME for their support. I...
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