International Journal of Qualitative Studies on Health and Wellbeing Patient's experiences and effects of non-pharmacological treatment for...
Before becoming ill, my relationship with the medical world was always great. It was pretty much straightforward really. During my profession as...
https://www.washingtonpost.com/lifestyle/2020/05/08/what-i-learned-watching-my-mom-parent-with-disability/ Brittany Collins, author The mom has...
https://www.tandfonline.com/doi/full/10.1080/21641846.2020.1751455 Australian research Articles Patient experiences and the psychosocial...
Note from Moderators: IiME created the EMEA, and also the EMECC (Clinicians Council) and the EMERG (Research Group). The EMEA is a member of EFNA...
We've been discussing the name here:...
Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients...
Hi all, Please consider completing this research survey from Marta Encefalomielitis Miálgica on Facebook's son : Hello! I am a fourth-year...
From: Dr. Marc-Alexander Fluks Source: Blekinge Institute of Technology (Sweden) Date: January 23, 2020 URL:...
Smiling for the camera, radiant Catherine Allen looks a picture of health and happiness. Yet her life has been blighted by a cruel energy-sapping...
I haven't seen this posted. It's a personal account by a UK pwME who participated in a study, pre-PACE, using GET/CBT. Very unfortunately, and...
So one challenge that I believe we face is that if most, if not all, research studies insist on PEM as part of the inclusion criteria, we run the...
Patient involvement in research—a brief history There is a well-described mismatch between the research that is done on a particular condition...
Moderator note: The first 8 posts on this thread have been moved from here. ____________________________________ Is there any systematic research...
I've written a blog post about the recent amendment to the Cochrane review and how it doesn't address the major flaws. I will post the full text...
Your experience of ME services - Survey report by #MEAction UK Article:...
Excellent article in Huff Post by a woman with ME who was told to exercise, and suffered as a result. I Sometimes Feel Defeated By My Disability...
write up on AfME website: What's it like having a debilitating illness that some people don't believe exists? When it leaves you too unwell to...
full title Dear Doctor: What Not to Say to Me and Other Fibromyalgia Patients although the author has ME/CFS Dear Doctor, I know you are...
A “fiercely independent” woman who has spent months trapped inside her own home after her medical condition deteriorated has said that it took a...
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