https://blogs.bmj.com/bmj/2019/02/08/hilde-t-myrhaug-and-tone-hansen-co-producing-a-systematic-review-with-patients/ At least I wanted the...
Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much A biopsychosocial camp has contended since the 1990s that regardless...
https://inews.co.uk/news/real-life/disabled-man-left-humiliated-wet-himself-in-airport-after-begged-for-help/?fbclid=IwAR1VvnsRoqE4K1Cjmffc-72Kg1mY...
Worth a read. Considers how patient feedback is viewed by health professionals and managers and cultural problems that PWME will likely recognise....
An article about the young couple Jasmine and Alex. Jasmine has epilepsy, ME and POTS and uses a wheel chair. They talk about the prejudice they...
Abstract Background The Clinical Understanding and Research Excellence in ME/CFS group (CureME) at the London School of Hygiene & Tropical...
(I don't understand why it says 'The Telegraph' when it seems to be a Yahoo article, but I'm just copying what came) Source: The Telegraph Datd:...
I'm not writing this for me, I'm not writing this for Amy my wife either, today I was made aware of a lady who suffers not only from ME but also...
The late Dr. Ann Macintyre's Frontline television program from the 1990s. [MEDIA]
Devendorf, A. R., Brown, A. A., & Jason, L. A. Chronic Illness Objective There is no consensus on recovery from myalgic encephalomyelitis and...
Patient experience survey About our patient experience survey 2018–2019 We are currently undertaking our third biennial patient experience survey....
it’s towards the end of the day and I just saw this, perhaps there isn’t time and we should keep it in mind for next year. (Assuming it’s a...
Taken from a blog originally from 2011 but the comments go on to 2018; Saturday, 3 September 2011 The Hospital Appointment... so a little...
Conclusions The results of this study confirm the GR’s observation of the assessment of ME patients by the UWV. People with ME regularly...
From two days ago but I don't think it's been posted here yet: SBS Insight by Simon Del Favero: I was in denial and ashamed by my CFS Looking to...
A blog about personal experience of PACE recommended 'treatments' published earlier this year. The PACE trial - a complaint. This is a tough...
This starts with some Action for ME video that I've seen before. Then it goes on to discuss the young woman's case, and progression to full-time...
[MEDIA] Would someone who's on twitter please make this dutch journalist aware of... - the S4ME PACE briefing paper:...
Sally DohertySaturday 25 Aug 2018 2:06 pm " I wake late, drag myself out from under my duvet and stumble to the kitchen. It would be a relief to...
" I’m not proud of cursing out a former GP. On top of that, I think she may have been even shorter than me, a very petite and soft-spoken woman....
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