psychology

Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic disease with the hallmark symptom of post-exertional malaise. Evidence for physiological causes is converging, however, currently no diagnostic test or biomarker is available. People with ME/CFS experience...

Abstract The hypothesis of a Hierarchy of the Sciences with physical sciences at the top, social sciences at the bottom, and biological sciences in-between is nearly 200 years old. This order is intuitive and reflected in many features of academic life, but whether it reflects the “hardness” of...

This article although not about ME/CFS has been cited in a number of papers: Citations of: Evidence-Based Practice and Psychological Treatments: The Imperatives of Informed Consent https://philarchive.org/citations/BLEEPA https://www.frontiersin.org/articles/10.3389/fpsyg.2016.01170/full

Faith Newton Abstract Children with ME/CFS who are severely ill are bedbound and homebound, and oftentimes also wheelchair-dependent. Very seriously affected children are often too sick for doctor’s office visits, let alone school attendance. The most recent data estimate that 2–5% of children...

Abstract Adult patients affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are at an increased risk of death by suicide. Based on the scientific literature and our clinical/research experiences, we identify risk and protective factors and provide a guide to assessing and...

https://bathpsychology.eu.qualtrics.com/jfe/form/SV_e3Q1UfPb2trpOol

Full title: Who should we ask about mental health symptoms in adolescents with CFS/ME? Parent-child agreement on the revised children’s anxiety and depression scale Open access, https://journals.sagepub.com/doi/10.1177/1359104521994880

Open access, https://link.springer.com/article/10.1007/s00787-021-01734-5

My daughter is 15, she has had ME/CFS now for 6 years. Gastro problems have always been a big part of her symptoms (stomach pain, lack of appetite, nausea, diarrhoea/cramps IBS type). She's got swallowing problems (waiting for a Paediatric SALT appointment) and she will have a Calprotectin...

Vink M, Vink-Niese A. The draft updated NICE guidance for ME/CFS highlights the unreliability of subjective outcome measures in non-blinded trials. Journal of Health Psychology. January 2021 (Editorial), doi:10.1177/1359105321990810...

Full title: “it’s a medical condition … you need to support as much as possible”: a qualitative analysis of teachers’ experiences of chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME) https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-020-02461-7 ETA link to article

Paywall, https://journals.sagepub.com/doi/10.1177/1359104520978461 Sci hub, https://sci-hub.se/10.1177/1359104520978461

Open access, https://www.sciencedirect.com/science/article/pii/S0022399920308849

From: Dr. Marc-Alexander Fluks B.Sc. Thesis Kate Donnelly Source: University of Tasmania Date: December 2019, online September 2020 URL: https://eprints.utas.edu.au/35168/ https://eprints.utas.edu.au/35168/1/Donnelly_whole_thesis.pdf

https://journals.sagepub.com/doi/full/10.1177/0308022620966254

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0172792 (as per abstract, not just about italian psychologists) I like the term QRP (Questionable research practices); @dave30th could make good use of it.

Full title: The Lonely, Isolating, and Alienating Implications of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.mdpi.com/2227-9032/8/4/413

Good intentions regularly lead to terrible outcomes. While researchers’ hearts may be pure, that fact alone does not guarantee that their works will be blessed. In psychology, we sometimes talk about the “just-world fallacy”, the belief that in the end our collective actions will average out...

https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/Resources_for_Clinicians_and_Healthcare_Professionals/CBT_for_CFS_Therapist_Manual.pdf link found here...

I believe patience is one of the most important character traits, especially for us. How can we work on improving the patience for getting better even when we feel extremely ill?