resources

I have a friend who asked me what book to read to understand ME/CFS and “the situation”. They are not a medical professional or psychiatrist, they are just an average educated person who wants to “learn about” ME/CFS. I really have no clue what to send them. I’d preferably like something that...

The Science for ME committee and members are running a project to develop fact sheets about aspects of ME/CFS. These are being developed in consultation with the forum membership, with the aim of providing information that is both helpful and well based in evidence. As each fact sheet is...

Article from The Sick Times: Now offline: Government resources about Long COVID as a disability (headline refers to the US government)

New Video: George Monbiot describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.

"Caring for people with ME/CFS who are bedbound" (2023) 8-page fact sheet from Emerge Australia https://emerge.org.au/wp-content/uploads/2023/04/caringforpeoplewithmecfswhoarebedbound.pdf

Posts moved from News from Aotearoa/New Zealand and the Pacific Islands YouTube - Post-Exertional Malaise in ME/CFS - Management and Supports - Webinar for Health Professionals (24 mins) Dr Cathy Stephenson for ME Awareness NZ on World ME Day. I think this is a good resource for GPs and...

https://learngenomics.dev/ Audience is computer scientists, but useful for anyone wanting an overview of this complex topic.

I thought I would brainstorm on this as there may be documents I’ve forgotten about or was never aware of. They don’t have to be long: one- and two-page documents can also be useful. I’m personally interested in English-language documents (the discussion could still be of interest to people in...

FYI—includes MECFS Also not sure why Fiona is calling MECFS a related post-viral condition, when many Long Covid people meet the criteria for MECFS.

The book is set for release in spring 2020 full article here https://www.shropshirestar.com/entertainment/telford-entertainment/2019/11/25/telford-woman-releases-book-to-help-children-understand-adult-illness/

Full article = https://www.meaction.net/2019/06/12/meaction-releases-an-updated-me-research-summary/ Direction link to PDF file = http://www.meaction.net/wp-content/uploads/2019/06/19_MEA_Revised_2019_Research_Summary_190610.pdf Many thanks to @JaimeS and the whole ME Action team!

I've recently had to do a few internet searches looking for some helpful information. My son has been having difficulties as he realises that dad is ill and may not get better. This is quite a normal reaction apparently for a child of his age (9). It is manifesting itself mainly as...