stigma

8: How Stigma Emerges and Mutates: The Case of Long COVID Stigma Hannah Farrimond, Mike Michael [Line breaks added] Introduction How do new stigmas emerge? How do they relate to existing stigma? Why are we seeing an emergent devaluation and discrimination of people who have long COVID, given...

From Literary Hub: Two Households, Both Alike in Indignity: An Interview with Anne Ursu Anne Ursu is the author of Not Quite a Ghost, a middle grade novel about "an eleven-year-old, Violet, who comes down with a post-viral illness" It's hard to pick a section to quote, but here's one that...

Catastrophism, Myalgic Encephalomyelitis-Chronic Fatigue Syndrome and Fibromyalgia: how research questions ‘construct’ realities Oter-Quintana; Alameda-Cuesta Letter to the Editor. No abstract. Link (Enfermería Clínica (English Edition)) [Paywall]

“I would love to say it’s the fatigue but honestly it’s not”: Into Adulthood with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis A. Tenhave; R. Bognar; A. Sidis Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a debilitating and poorly understood condition which interferes...

The impact of long COVID on UK healthcare workers and their workplace: a qualitative study of healthcare workers with long COVID, their families, colleagues and managers Al-Oraibi, Amani; Tarrant, Carolyn; Woolf, Katherine; Nellums, Laura B.; Pareek, Manish Healthcare workers (HCWs) have been...

Stigma, Chronicity and Complexity of Living with Long Covid in Kenya Bosire, Edna N.; Kamau, Lucy W.; Mendenhall, Emily Living with a complex chronic illness can be debilitating as people are constantly negotiating new bodily symptoms, constant treatment-seeking, readjustments to identity and...

“I still can’t forget those words”: mixed methods study of the persisting impact on patients reporting psychosomatic and psychiatric misdiagnoses Sloan, Melanie; Bosley, Michael; Gordon, Caroline; Pollak, Thomas A; Mann, Farhana; Massou, Efthalia; Morris, Stephen; Holloway, Lynn; Harwood...

The Experience of Stigma in People Affected by Fibromyalgia: A Metasynthesis Benedetta Colombo, Eleonora Zanella, Alessandro Galazzi, Paola Arcadi Aim To review the qualitative literature regarding how people with fibromyalgia experience and are impacted by stigma. Design A systematic review...

Patient-reported outcome measures for post-COVID-19 condition: a systematic review of instruments and measurement properties Ann-Kristin Baalmann; Christine Blome; Nina Stoletzki; Theresa Donhauser; Christian Apfelbacher; Katharina Piontek OBJECTIVES Post-COVID-19 condition (PCC), also referred...

Medical ambivalence and Long Covid: The disconnects, entanglements, and productivities shaping ethnic minority experiences in the UK Ridge; Broom; Alwan; Chew-Graham; Smyth; Gopal; Kingstone; Gaszczyk; Begum Structural violence -related to ‘isms’ like racism, sexism, and ableism – pertains to...

Full title: Barriers and facilitators of healthcare access for long COVID-19 patients in a universal healthcare system: qualitative evidence from Austria Peter Gamillscheg, Agata Łaszewska, Stefanie Kirchner, Kathryn Hoffmann, Judit Simon & Susanne Mayer Abstract Background Long COVID-19...

Abstract Objective: Persistent somatic symptoms (PSS) describe recurrent or continuously occurring symptoms such as fatigue, dizziness, or pain that have persisted for at least several months. These include single symptoms such as chronic pain, combinations of symptoms, or functional disorders...

Highlights Stigma in FND is widespread, and few studies exist looking at stigma outside of functional seizures. This is the first mixed methods review to comprehensively analyse stigma in FND, to include all FND phenotypes. Stigma in FND is higher than other neurological conditions, and...

Highlights In consultations for PPS/FDs, stigmatisation can occur in various ways in the communication process. Current models do not accurately reflect the patients’ experiences of stigmatisation in their consultations for PPS/FDs. New way to understand and categorise common forms of...

Background: People from ethnic minority groups are disproportionately affected by COVID-19, are less likely to access primary healthcare and report dissatisfaction with healthcare. Whilst the prevalence of Long Covid in ethnic minority groups is unclear, these groups are under-represented in...

Measuring persistent somatic symptom related stigmatisation: Development of the Persistent Somatic Symptom Stigma scale for healthcare professionals (PSSS-HCP) Brodie McGhie-Fraser, Caoimhe McLoughlin, Peter Lucassen, Aranka Ballering, Sandra van Dulmen, Evelien Brouwers, Jon Stone, Tim olde...

Drawing the Line Between Postacute Sequelae of COVID-19 and Functional Neurologic Disorders: A Daunting Clinical Overlap or Irrelevant Conundrum? Sales, Paulo M.G.;Greenfield, Melissa J.;Pinkhasov, Aaron;Viswanathan, Ramaswamy;Saunders, Ramotse;Huremović, Damir Coronavirus disease 2019...

Abstract Background: Myalgic encephalomyelitis (ME, also known as chronic fatigue syndrome or ME/CFS) is a debilitating, complex, multi-system illness. Developing a comprehensive understanding of the multiple and interconnected barriers to optimal care will help advance strategies and care...

Objectives: We examined the process by which anticipated stigma relates to quality of life among people living with chronic illnesses. We hypothesized that stress, social support and patient satisfaction mediate the relationships between three sources of anticipated stigma and quality of life...

Long COVID: Alice Evans, brucellosis, and reflections on infectious causes of chronic disease Smith, Tara C Despite over a century of research on the link between infection and chronic diseases, we again find ourselves flummoxed by a new pathogen that causes long-term impairment. Patients have...