Stigma, Chronicity and Complexity of Living with Long Covid in Kenya
Bosire, Edna N.; Kamau, Lucy W.; Mendenhall, Emily
Living with a complex chronic illness can be debilitating as people are constantly negotiating new bodily symptoms, constant treatment-seeking, readjustments to identity and...
“I still can’t forget those words”: mixed methods study of the persisting impact on patients reporting psychosomatic and psychiatric misdiagnoses
Sloan, Melanie; Bosley, Michael; Gordon, Caroline; Pollak, Thomas A; Mann, Farhana; Massou, Efthalia; Morris, Stephen; Holloway, Lynn; Harwood...
The Experience of Stigma in People Affected by Fibromyalgia: A Metasynthesis
Benedetta Colombo, Eleonora Zanella, Alessandro Galazzi, Paola Arcadi
Aim
To review the qualitative literature regarding how people with fibromyalgia experience and are impacted by stigma.
Design
A systematic review...
Medical ambivalence and Long Covid: The disconnects, entanglements, and productivities shaping ethnic minority experiences in the UK
Ridge; Broom; Alwan; Chew-Graham; Smyth; Gopal; Kingstone; Gaszczyk; Begum
Structural violence -related to ‘isms’ like racism, sexism, and ableism – pertains to...
Full title: Barriers and facilitators of healthcare access for long COVID-19 patients in a universal healthcare system: qualitative evidence from Austria
Peter Gamillscheg, Agata Łaszewska, Stefanie Kirchner, Kathryn Hoffmann, Judit Simon & Susanne Mayer
Abstract
Background
Long COVID-19...
Abstract
Objective: Persistent somatic symptoms (PSS) describe recurrent or continuously occurring symptoms such as fatigue, dizziness, or pain that have persisted for at least several months. These include single symptoms such as chronic pain, combinations of symptoms, or functional disorders...
Highlights
Stigma in FND is widespread, and few studies exist looking at stigma outside of functional seizures.
This is the first mixed methods review to comprehensively analyse stigma in FND, to include all FND phenotypes.
Stigma in FND is higher than other neurological conditions, and...
Highlights
In consultations for PPS/FDs, stigmatisation can occur in various ways in the communication process.
Current models do not accurately reflect the patients’ experiences of stigmatisation in their consultations for PPS/FDs.
New way to understand and categorise common forms of...
Background: People from ethnic minority groups are disproportionately affected by COVID-19, are less likely to access primary healthcare and report dissatisfaction with healthcare. Whilst the prevalence of Long Covid in ethnic minority groups is unclear, these groups are under-represented in...
Measuring persistent somatic symptom related stigmatisation: Development of the Persistent Somatic Symptom Stigma scale for healthcare professionals (PSSS-HCP)
Brodie McGhie-Fraser, Caoimhe McLoughlin, Peter Lucassen, Aranka Ballering, Sandra van Dulmen, Evelien Brouwers, Jon Stone, Tim olde...
Drawing the Line Between Postacute Sequelae of COVID-19 and Functional Neurologic Disorders: A Daunting Clinical Overlap or Irrelevant Conundrum?
Sales, Paulo M.G.;Greenfield, Melissa J.;Pinkhasov, Aaron;Viswanathan, Ramaswamy;Saunders, Ramotse;Huremović, Damir
Coronavirus disease 2019...
Abstract
Background: Myalgic encephalomyelitis (ME, also known as chronic fatigue syndrome or ME/CFS) is a debilitating, complex, multi-system illness. Developing a comprehensive understanding of the multiple and interconnected barriers to optimal care will help advance strategies and care...
Objectives: We examined the process by which anticipated stigma relates to quality of life among people living with chronic illnesses. We hypothesized that stress, social support and patient satisfaction mediate the relationships between three sources of anticipated stigma and quality of life...
Long COVID: Alice Evans, brucellosis, and reflections on infectious causes of chronic disease
Smith, Tara C
Despite over a century of research on the link between infection and chronic diseases, we again find ourselves flummoxed by a new pathogen that causes long-term impairment. Patients have...
Abstract
A considerable amount of people who have been infected with SARS-CoV-2 experience ongoing symptoms, a condition termed long COVID. This study examined nuanced experiences of social stigma in people with long COVID and their associations with perceived stress, depressive symptoms...
Abstract
Background
Stigma can be experienced as perceived or actual disqualification from social and institutional acceptance on the basis of one or more physical, health-related, behavioural, or other attributes deemed to be undesirable. Long COVID is a predominantly multisystem condition...
Bolding mine:
This study uses machine learning and natural language processing tools to examine the language used by healthcare professionals on a global online forum. It contributes to an underdeveloped area of knowledge, that of physician attitudes toward their patients.
Using comments left...
Edit: Now published, see post #4 in this thread.
Abstract
Background: Stigma can be experienced as perceived or actual disqualification from social and institutional acceptance on the basis of one or more physical, behavioural or other attributes deemed to be undesirable. Long Covid is a...
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