stigma

Abstract A considerable amount of people who have been infected with SARS-CoV-2 experience ongoing symptoms, a condition termed long COVID. This study examined nuanced experiences of social stigma in people with long COVID and their associations with perceived stress, depressive symptoms...

Abstract Background Stigma can be experienced as perceived or actual disqualification from social and institutional acceptance on the basis of one or more physical, health-related, behavioural, or other attributes deemed to be undesirable. Long COVID is a predominantly multisystem condition...

Bolding mine: This study uses machine learning and natural language processing tools to examine the language used by healthcare professionals on a global online forum. It contributes to an underdeveloped area of knowledge, that of physician attitudes toward their patients. Using comments left...

Edit: Now published, see post #4 in this thread. Abstract Background: Stigma can be experienced as perceived or actual disqualification from social and institutional acceptance on the basis of one or more physical, behavioural or other attributes deemed to be undesirable. Long Covid is a...

Opinion piece in the BMJ Conclusion Going forward, we recommend: Acknowledging that patients with long term conditions may experience challenging forms of “identity loss” which may lead them to feel more vulnerable. Addressing stigma in healthcare as well as in communities and workplaces...

Physician Use of Stigmatizing Language in Patient Medical Records Jenny Park; Somnath Saha; Brant Chee, Janiece Taylor; Mary Catherine Beach JAMA Netw Open. 2021 https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2781937 Key Points Question What types of stigmatizing language are...

Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic disease with the hallmark symptom of post-exertional malaise. Evidence for physiological causes is converging, however, currently no diagnostic test or biomarker is available. People with ME/CFS experience...

https://meassociation.org.uk/2021/06/guest-blog-the-shame/

I can't access the full text but 6 of the references are to chronic fatigue syndrome papers. https://journals.sagepub.com/doi/abs/10.1177/13591053211024718 The need for a standardized conceptual term to describe invalidation of patient symptoms Allyson C Bontempo First Published June 11, 2021...

Full title: Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected Abstract People who are severely and very severely affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...

Column (paywalled) by James Marriott in The Times. https://www.thetimes.co.uk/article/lets-end-the-stigma-of-psychosomatic-illness-whfdlwhph Anyone know whether that 'a third of outpatients...' is right? Or where it's from? @dave30th perhaps? I think the article shows what we're up against...

Tweets from Katherine Cheston "I'm presenting a paper entitled 'Shame, stigma and the shadows of contested, ‘unexplained’ illness' this Thursday at the @NNMHRmed Congress (Panel 10, 'Shame and Silences', 14.30-16.00). Registration is free & all are welcome! nnmhr2021.org" "I'll discuss these...

eta: not a recommendation just for info.

My bolding https://thepolyphony.org/2020/09/29/shame-stigma-and-unexplained-symptoms/

The Patient is In - A Podcast by StuffThatWorks Stories showcasing what's possible when people are empowered to advocate for their own health, or the health of their loved ones. Hosted by Dina Kraft & produced by Skyler Inman September 7 2020 - Episode 11 For 15 years Joe Landson lived with a...

I imagine this happens with ME/CFS also https://gavinpublishers.com/articles/review-article/Journal-of-Nursing-and-Womens-Health/healthcare-educational-practices-on-stigmatism-of-chronic-illness-a-qualitative-narrative-study

The European ME Alliance has been a member organisation of the European Federation of Neurological Associations since 2015 (https://www.efna.net/emea/) This survey by EFNA includes M.E. https://www.surveymonkey.com/r/EFNA-YS It's open until 21st May and findings will be published on World...

“The real me shining through M.E.”: Visualizing masculinity and identity threat in men with myalgic encephalomyelitis/chronic fatigue syndrome using photovoice and IPA. In: Psychology of Men & Masculinities https://psycnet.apa.org/record/2019-32617-001