stigma

Opinion piece in the BMJ Conclusion Going forward, we recommend: Acknowledging that patients with long term conditions may experience challenging forms of “identity loss” which may lead them to feel more vulnerable. Addressing stigma in healthcare as well as in communities and workplaces...

Physician Use of Stigmatizing Language in Patient Medical Records Jenny Park; Somnath Saha; Brant Chee, Janiece Taylor; Mary Catherine Beach JAMA Netw Open. 2021 https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2781937 Key Points Question What types of stigmatizing language are...

Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic disease with the hallmark symptom of post-exertional malaise. Evidence for physiological causes is converging, however, currently no diagnostic test or biomarker is available. People with ME/CFS experience...

https://meassociation.org.uk/2021/06/guest-blog-the-shame/

I can't access the full text but 6 of the references are to chronic fatigue syndrome papers. https://journals.sagepub.com/doi/abs/10.1177/13591053211024718 The need for a standardized conceptual term to describe invalidation of patient symptoms Allyson C Bontempo First Published June 11, 2021...

Full title: Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected Abstract People who are severely and very severely affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...

Column (paywalled) by James Marriott in The Times. https://www.thetimes.co.uk/article/lets-end-the-stigma-of-psychosomatic-illness-whfdlwhph Anyone know whether that 'a third of outpatients...' is right? Or where it's from? @dave30th perhaps? I think the article shows what we're up against...

Tweets from Katherine Cheston "I'm presenting a paper entitled 'Shame, stigma and the shadows of contested, ‘unexplained’ illness' this Thursday at the @NNMHRmed Congress (Panel 10, 'Shame and Silences', 14.30-16.00). Registration is free & all are welcome! nnmhr2021.org" "I'll discuss these...

eta: not a recommendation just for info.

My bolding https://thepolyphony.org/2020/09/29/shame-stigma-and-unexplained-symptoms/

The Patient is In - A Podcast by StuffThatWorks Stories showcasing what's possible when people are empowered to advocate for their own health, or the health of their loved ones. Hosted by Dina Kraft & produced by Skyler Inman September 7 2020 - Episode 11 For 15 years Joe Landson lived with a...

I imagine this happens with ME/CFS also https://gavinpublishers.com/articles/review-article/Journal-of-Nursing-and-Womens-Health/healthcare-educational-practices-on-stigmatism-of-chronic-illness-a-qualitative-narrative-study

The European ME Alliance has been a member organisation of the European Federation of Neurological Associations since 2015 (https://www.efna.net/emea/) This survey by EFNA includes M.E. https://www.surveymonkey.com/r/EFNA-YS It's open until 21st May and findings will be published on World...

“The real me shining through M.E.”: Visualizing masculinity and identity threat in men with myalgic encephalomyelitis/chronic fatigue syndrome using photovoice and IPA. In: Psychology of Men & Masculinities https://psycnet.apa.org/record/2019-32617-001

How psychiatric referrals influence stigmatization in patients with myalgic encephalomyelitis and chronic fatigue syndrome: An examination of American and British models Julia Terman, Joseph Cotler, Leonard A. Jason Article: Community Psychology in Global Perspective...

https://www.meaction.net/2019/03/23/our-community-will-not-suffer-stigma-and-distortion/

I wasn't sure where to post this but social and professional stigma around this disease seems kind of relevant to what psychosocial medicine claims to be about. It's a quick survey for a university project. So unlikely to be published research but it's quick to do.

Julia M Terman, Jessica M Awsumb, Joseph Cotler, Leonard A Jason http://journals.sagepub.com/doi/abs/10.1177/1359105318796906

Mirror: Tory minister demands comedian Ricky Gervais apologises for branding ME sufferers 'lazy' in offensive joke https://www.mirror.co.uk/news/politics/tory-minister-demands-comedian-ricky-12767943 A Government minister has demanded Ricky Gervais publicly apologise for a joke branding ME...