BEYOND BONES - THE RELEVANCE OF VARIANTS OF CONNECTIVE TISSUE (HYPERMOBILITY) TO FIBROMYALGIA, ME/CFS AND CONTROVERSIES SURROUNDING DIAGNOSTIC CLASSIFICATION: AN OBSERVATIONAL STUDY
This article is a preprint and has not been peer-reviewed [what does this mean?]. It reports new medical research...
Health-related quality of life in patients with myalgic encephalomyelitis/chronic fatigue syndrome: an Australian cross-sectional study
https://link.springer.com/article/10.1007/s11136-019-02411-6
Dear mates,
I want to inform about a crowfunding campaign for a study about etiopathogenesis of ME/CFS that could lead to set potencial biomarkers for the disease.
The current objective is of 46.800,00 € and the link for donations is the following...
Mentioned on another thread.
ME/CFS Genes Study
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We are currently recruiting ME/CFS patients AND Healthy Controls for this completely web based study to create a one of a kind genetic database for individuals with ME/CFS.
Participation for this study requires you to have a computer with...
Spotted a link to this study in a tweet by @Tom Kindlon
It is a qualitative study from Norway with interviews of seven adolescents with ME.
The names of the authors are unfamiliar to me and I didn't get that much from the abstract, so wasn't sure which forum to put this in but decided to go...
I've posted this here in members only as I am not sure if it's allowed (I will report it myself to check). If it is, it might get moved, if not then I'm happy for it to be deleted.
"
Do you have a diagnosis of Chronic Fatigue Syndrome (CFS)/ myalgic encephalomyelitis (ME) and have you been in...
Multidimensional studies
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at the National Institutes of Health
Lead researcher: Avindra Nath
National Institute of Neurological Disorders and Stroke (NINDS)
Study Start Date: January 21, 2016
Estimated Study Completion Date: September 15, 2020...
SolveMECFS posted a notice on twitter about this so I'm passing it on.
Dr. Fred Friedberg is looking for volunteers for a NIH-funded study: "Daily Activity Patterns and Heart Rate Variability in ME/CFS." Recruiting from USA only.
Email: patricia.bruckenthal@stonybrook.edu
More details here...
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