Copied post
Watching at the moment but I think it should be an interesting watch.
https://youtu.be/ZZGlVJYyAO4
Discussion here Video: Professor Warren Tate's Update on His Research into ME/CFS - 11th November 2017
#MEAction UK and #MEAction Scotland have created a film for #MillionsMissing this year. Really grateful to be able to include expert testimony from Professor Chris Ponting and Dr Nina Muirhead, and for the many video submissions from people with ME.
It was both fun, challenging and deeply...
There are several diagnostic criteria for ME which complicates research and hinders the development of safe and effective treatments. Broad criteria for ME results in misdiagnosis and incorrect treatment. Researchers need stricter criteria [1]. Misdiagnosis is common, 40% of patients diagnosed...
I thought it might be useful to have a thread on ME/CFS news for the Netherlands, similar to the threads we have on Scandinavian countries. If there's some really important news we could make a separate thread for it and link to it in this general thread that keeps an overview of all ME/CFS...
MEA: Real People. Real Illness. ME Awareness Month 2020.
ME/CFS affects the lives of over 265,000 people in the UK alone. The ME Association put together this video, with the help of real people with ME, to show the different types of people suffering with ME.
This post has been copied and some following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid
"Paul Garner: For 7 weeks I have been through a roller coaster of ill health, extreme emotions, and utter exhaustion
May 5, 2020
Paul Garner, professor of...
The PACE trial evaluated Graded Exercise (GET) Therapy and Cognitive Behavioural Therapy (CBT) as treatments for ME. Exercise as treatment seems counterintuitive when even minimal mental or physical exertion leads to a worsening of symptoms and reduced function [1]. The defining symptom of ME is...
Today is the première of the English version of a three minute long film about ME and PEM.
It's made by the Norwegian ME Association - Rogaland County with professional help from psychologist Ketil Jakobsen and paediatric neurologist Kristian Sommerfelt.
The film is available for everyone to...
Topic
Post-Exertional Malaise: Identifying, Understanding and Preventing
Description
Post-exertional malaise (PEM) is the hallmark clinical feature of ME/CFS. The webinar will present research that advances our understanding of this important complex of symptoms and introduce a timecourse for...
(I wasn't sure which forum to post this to). This is being promoted as being a relevance to people with ME. I haven't watched it and know very little if anything about this area.
Yandex translation
original site, in spanish
https://www.dgcs.unam.mx/boletin/bdboletin/2020_168.html
eta: there is a short video at the link by the Doctor quoted in the article; Oscar Prospero Garcia from the Faculty of Medecine at UNAM
Note from moderators:
First two posts copied/moved from thread here
https://www.s4me.info/threads/news-from-new-zealand-and-the-pacific-islands.4230/page-18#post-235524
New article in the NZ Herald from the Complex Chronic Illness Support team...
Moderator note:
A previous version of this video, now no longer available, was discussed here.
https://www.s4me.info/threads/new-video-what-is-me.11849/
ETA: Apologies, link was wrong, updated 08/02/2020 with correct link for old thread.
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