13th Invest in ME Research International ME Conference - 1st June 2018

45 minutes without a single tweet bah, I wish they were live streaming.

Needless to say I don’t have much else to occupy me today

 

Out of respect for Anne Örtegren, I'm sharing this photo from today's conference of Invest in ME Research Trustee Richard Simpson, organiser of the charity's conference events along with Pia Simpson and Chairman, Kathleen McCall, with the help of fellow staunch advocates such as Anne.

A few weeks before her death she wrote to me on Facebook, "I feel very strongly about IiMER and am just in awe of what Pia, Richard and everyone involved have accomplished. Where would we be without them?"

Here is the tribute paid to Anne by the charity upon hearing the news of her death: http://www.investinme.org/AnneÖrtegren.shtml

This is the page on their conference site about today's memorial lecture: http://investinme.eu/IIMEC13-news-180202.shtml

https://twitter.com/user/status/1002499661264052226


Here is Nancy Van Hoylandt by the way, she represents the European ME Alliance on the European Federation of Neurological Associations, which runs the Under The Umbrella of neurological disorders awareness campaign.

https://twitter.com/user/status/1002500786063015936

 

Theoharides threw out a lot of info about how mast cells are, in theory, are implicated in many illnesses.

Mady Hornig's presentation reviewed what factors might need to be investigated to identify subsets within ME heterogeneity.

 

Maureen Hanson has just reviewed the work that the CRC at Cornell will do.

 

Apparently she will have a paper out soon on metabolites.

 

https://twitter.com/user/status/1002549460616876033

https://twitter.com/user/status/1002560738152632320

 

https://twitter.com/user/status/1002555984978563074

 

Sounds intriguing but I don't entirely understand the tweet - will have to wait for the conference DVD...

https://twitter.com/user/status/1002566746551676928

 

Prof Baranuik's title hadn't been announced but he's talking about...

https://twitter.com/user/status/1002572826677825538

 

Some photos from the conference posted by OMF:
https://www.facebook.com/pg/OpenMedicineFoundation/photos/?tab=album&album_id=1481003228670760

 

https://twitter.com/user/status/1002577494283780096

 

His talk title is "ME/CFS from a sleep medicine perspective", was really interesting, at least to me.

 

Ron Davis on now - not sure if that's what this refers to:

https://twitter.com/user/status/1002580222292709377

 

https://twitter.com/user/status/1002580720458649600

 

https://twitter.com/user/status/1002585692957040641

 

https://twitter.com/user/status/1002591219829084161

 

https://twitter.com/user/status/1002590587483287552

 

I guess that's it... I hope some people who were there will give us a bit of detail, once they've had a rest!

 

I'll try to put some thoughts together when I get a chance.

For now - It was interesting without learning anything too new.

The biggest take-home message is probably just the amount of research work going on now. But I think we are still a bit away from any Eureka moment.

Ron Davis' "metabolic trap" theory had him optimistic and excited but he cautions things never turn out to be straightforward. He thinks he will know if his theory is sound or not within a year.
His link to trypanosome was also interesting.

Some good talks, the more interesting ones are sometimes the least expected.