An Open Letter to BACME re ME/CFS Guide to Therapy 2025

That does sound exhausting and frustrating!

If they read the three factsheets they should probably be able to get some kind of understanding of accessibility, etc., and understand that any kind of psychosomatic approaches should be avoided.

Other than that, I would maybe try to look for a couple of written accounts of patient testimonies that (importantly) don’t include unfounded claims about pathology etc.

My therapist knew nothing about ME/CFS or LC, and said so, and she let me tell her what I needed. I had digital sessions and when I get worse she offered to let me split up the session and only charge me for the time spent over months (and not the whole hour for every started session). When she made suggestions for things to do she was clear that I had to say if it didn’t fit my circumstances.

I think most of that is just basic human decency and I’m not sure I would have stayed with her if she didn’t do those things. But I recognise that I might have gotten lucky and that shopping around might not be possible or easy.

Thanks!
 
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