Article: How having a disability became cool — The Telegraph

Chandelier

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3400-word article


How having a disability became cool​

Young women, nicknamed ‘sickfluencers’, are turning chronic illness into a lifestyle trend and entrenching a culture of economic inactivity
Poppy Coburn Associate Comment Editor​
Published 05 September 2026​

Perhaps you’ve seen it on a news segment on television about a transgender rights march, where every other attendee appears to be supported by a walking stick.​
Or perhaps you’ve heard about it in your family WhatsApp group, when your sister tells you about your seemingly healthy niece’s new condition.​
If you still haven’t noticed it, your daughter surely can’t have escaped the bravely smiling young women on Instagram, their profiles decked out in acronyms.​
POTS. ME. CF. ADHD. MDD. GAD. PMDD. EDS. FND.​
For a steadily growing group of British young women, these acronyms – and the conditions they represent – are fundamental to their lives.​
The country is sicker than it’s ever been before, and it’s not afraid of shouting about it. Disability is changing.​
To many, it is no longer an adversity to overcome, but a social identity akin to one’s sexuality, gender, or race; an immutable reality to be celebrated by the subject and accommodated by the rest of us.​
One in four British people is now disabled, according to the Department for Work and Pensions’ Family Resources Survey.​
To put this figure in context, this is a higher rate of disability than witnessed in the immediate aftermath of the Second World War.​
The growth in those identifying as disabled does not reflect a sudden, shocking increase in the number of paraplegics. The twin driving factors are, instead: mental health disorders and chronic conditions.​
They can be hard to “prove” and harder to effectively treat, and are more likely to be experienced by young women.​
A cohort of young people – somewhat cruelly dubbed “sickfluencers” – want to tell you about their conditions and convince you they are real. Like the rest of my generation, they broadcast their struggles to an online community of like-minded individuals.​
But, were they not decked out in the accessories of their disease, it would be impossible to perceive the conditions they consider to be so central to their interaction with the world.​






This week, Dr Lesley Kavi, a former GP and chair of Pots UK, said that cases have significantly increased since the pandemic, but “half of patients are told that their symptoms are all in their head”.​
She added: “When they describe so many symptoms at one time, and the doctors don’t think to test for Pots, they assume the problem is psychological.”​
But, says O’Sullivan, there is no “demonstrable pathology or proof of a nervous system disorder.​
There is no pathology to prove a diagnosis”. It’s hardly surprising, then, that the rising number of women identifying as having Pots – with its relatable list of symptoms – is a prime example of what some doctors worry is an epidemic of overdiagnosis.​
Dr Katie Musgrave, a general practitioner, has seen this phenomenon first-hand.​
She describes a “hyper-awareness of physical symptoms like fatigue and a racing heart” from patients who visit her seeking an explanation for their pain, with an expectation that there will be a single, incontrovertible diagnosis.​
Often though, she says, it is more likely that factors such as “a lack of sleep and exercise and a poor diet” are causing the patient’s symptoms, and these can be resolved with minimal medical intervention.​
Some women, however, do not accept such a verdict. Invariably, these individuals have already decided they have a certain condition before they see a doctor, and if the GP refuses to validate their beliefs, they “seek out a private specialist and get a diagnosis of an unusual condition,” says Musgrave.​


 
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Google Translate link.

Somehow reminds me of this article in the German newspaper taz (machine translation):



“The Problem Isn’t Us”​

Male-centered medicine nearly cost her her life, says Christina Pingel. Doctors told her she was hysterical and failed to detect a heart defect.
September 1, 2026​
taz: Ms. Pingel, to what extent did male-centered medicine nearly cost you your life?​
Christina Pingel: I had severe symptoms for ten years, and they gradually became worse. But numerous doctors told me that they were psychosomatic.​
taz: What kind of symptoms did you have?​
Pingel: I had cardiac arrhythmias that frightened me enormously and severely restricted my life. I had a feeling of pressure in my chest and difficulty breathing, especially when lying down. I felt dizzy all the time and could hardly sleep.​
taz: And you endured that for ten years?​
Pingel: It wasn't that bad all the time, but it kept getting worse. While my friends were out and about, I was increasingly staying at home. I was constantly exhausted. Eventually, I nearly fainted at the office. A cardiologist finally diagnosed me with severe mitral valve regurgitation, which was probably congenital.​
taz: What exactly is that?​
Pingel: The valve between the left atrium and the left ventricle does not close properly. As a result, some of the blood flows back into the atrium with every heartbeat. The heart has to work harder to supply the body with enough blood and oxygen.​
taz: Did your mother have the same condition?​
Pingel: Probably not exactly the same one, but she also had a heart defect. In 1995, my mother was found clinically dead in her office. After several attempts, she was resuscitated. But she suffered severe brain damage and was left with profound disabilities.​
taz: Did she live in a care home?​
Pingel: Yes, she lived in a care home for another 25 years, but she no longer recognized me. I was nine years old at the time. That's difficult for a child that age to understand. At some point, I could no longer visit her because it was too distressing for me.​







taz: Let’s go back to your story. If a mother nearly dies from a heart defect and her daughter later goes to the doctor with chest pressure and shortness of breath, shouldn’t that set off all the alarm bells?​
Pingel: Unfortunately, it didn’t. Doctors would often say to me: “Of course, what happened with your mother was very distressing. But you’re a young woman — you’ll be fine. You’re being a little hysterical.” This is known as medical gaslighting.​
taz: What does that mean?​
Pingel: Medical gaslighting means that patients are not taken seriously or that their perception of their own condition is called into question. When I was 26, my symptoms began occurring more and more frequently. I saw numerous doctors and went to the emergency department several times. I was often laughed at, doctors would interrupt me, and they would condescendingly tell me that I was imagining everything. Again and again, they made me feel that my perception was wrong and that I didn’t understand my own body. I say “doctors,” but 95 percent of them were men.​
taz: How do you explain the fact that they didn’t take your symptoms seriously?​
Pingel: Our medical system, like all other areas of society, is organized along patriarchal lines. For centuries, the white male body was regarded as the medical norm. People who do not conform to that norm are not adequately represented in research, diagnosis, or treatment. This includes women, trans people, intersex people, and marginalized groups, among others. Yet the effects of medications, the symptoms of diseases, and the course of illnesses can differ significantly between people.​
taz: What, specifically, is different?​
Pingel: Bodies differ much more fundamentally than medicine assumed for centuries. For example, many medications take longer to be absorbed by women’s bodies. The body also often takes longer to break down medications, due to the way the liver functions and differences in body-fat and body-water composition. Hormonal fluctuations caused by the menstrual cycle, pregnancy, or menopause also have an effect. But there is very little research on this.​


 
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Dr Katie Musgrave, a general practitioner, has seen this phenomenon first-hand.She describes a “hyper-awareness of physical symptoms like fatigue and a racing heart” from patients who visit her seeking an explanation for their pain, with an expectation that there will be a single, incontrovertible diagnosis.Often though, she says, it is more likely that factors such as “a lack of sleep and exercise and a poor diet” are causing the patient’s symptoms, and these can be resolved with minimal medical intervention.

A previous missive from Katie Musgrave in this members-only post.
 
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