Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

[Sparkly Unicorn]

There's a other Brain retraining book about to be published next year - as part of a recovery narrative. Unfortunately it's under a big 5 publisher Penguin Random House. Emma Zimmerman Body Songs.

The inbuilt ableism of publishing and the lure of the recovery story means that brain retraining is perfect territory.

The author apparently recovered within a year of COVID.

Body Songs by Emma Zimmerman: 9780593994276 | PenguinRandomHouse.com: Books

A luminous, searching memoir of illness, uncertainty, and the strange, intimate work of healing In 2022, Emma Zimmerman contracted COVID-19. What she expected to be a mild illness instead unraveled into...

www.penguinrandomhouse.com

 

[MrMagoo]

As I understand it, randomised controlled trials were introduced because relying on expert clinical opinion proved to be a disaster way too many times.

And it still is.

It's brazen corruption of science.


And is it, or the pattern of it, unique to ME/CFS, et al? Or are they just arbitrarily pathologising normal physiological responses to suit their prejudices?

Also a good question.

I just think if they are moaning that science cant measure things properly in relation to brain training, well it can measure that so they should run a trial.

 

[MrMagoo]

There's a other Brain retraining book about to be published next year - as part of a recovery narrative. Unfortunately it's under a big 5 publisher Penguin Random House. Emma Zimmerman Body Songs.

The inbuilt ableism of publishing and the lure of the recovery story means that brain retraining is perfect territory.

The author apparently recovered within a year of COVID.

Body Songs by Emma Zimmerman: 9780593994276 | PenguinRandomHouse.com: Books

A luminous, searching memoir of illness, uncertainty, and the strange, intimate work of healing In 2022, Emma Zimmerman contracted COVID-19. What she expected to be a mild illness instead unraveled into...

www.penguinrandomhouse.com

This is exactly how The Salt Path happened. Who was the disabled writer who did a brilliant blog post about how publishing kept telling her they basically want a recovery arc?

 

[Hutan]

We have moved a long discussion about orthostatic intolerance that begins with a consideration of the possibility that tachycardia is a conditioned response. See here: What do we actually know about orthostatic intolerance?