CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

at the main page where this is linked to, there is this

which are just as bad, but aimed at patients/carers.

If any physician did want to know more, then they are only going to find more of the same through this site;

via the 'services leaflets and information' link takes you to the main clinic page and the
'Research into the causes and treatment of CFS/ME'
link, where the only 'research' listed is Crawleys.

 

As always it assumes activity can be increased:

Although it sounds appealing, I'm not sure anyone's baseline drops out anything like as mathematically neat as this:

This is GET basically, conveniently overlooking those who might be crippled by it long before getting any where near "8 hours' high energy activity per day":

 

I have tweeted Tymes Trust, asking if they are aware/seen this new Manual.

 

Is it anything @PhysiosforME can look at?

 

Yes, though it is about CBT, for the BPS crew there has always been an overlap between GET and CBT and as @Barry points out there is a GET component to this manual.

 

It's much worse than that, early in the document is a disclaimer saying they don't stand by any of it, it's just for information and should not be considered official, that therapists should be free to do whatever they want. Not considered official other than actually being used in practice, influencing real people's lives, of course.

They literally don't even stand by this, they're just saying it, they report, you decide. Just like the advice for exercise in COVID-19. They want all the power that comes from giving professional and none of the responsibility. Complete dereliction of duty. The system of medicine has broken down entirely here. Not in part, completely.

 

It does however provide a somewhat rambling summary of their current "treatment approach" and the psychs false illness beliefs which form the basis for them.

 

A saint's work has no peer.

So to use synonyms, be adaptable and accurate then. I'm not really clear on that.

* Bolding theirs. Interesting that. In all the many years Bristol has been churning out ME/cfs 'research' they are just NOW deciding it's time to have a look at something outside the endless refinement of GET/CBT. And they're using a BIOBANK. Just like, you know, those other real researchers. Thus we can be sure their research is also real and will yield high quality reliable data.

They're doing this of course for the same reason they're trying to co-opt neuroimaging -- to prove their for real and doing real research with real data and real reliable outcomes that prove their mindless MUSings on a topic they seem to know less than nothing about.
Edit: fix sp

 

Thank you

 

Starting at 4 hours per day, increasing by 10% every two weeks, and in a year they'll be doing an impressive 48 hours of high energy activity per day!

Seriously though, an increase of 20% per week means reaching the 8 hour target in 4 weeks.
An increase of 10% per fortnight means reaching the 8 hour target in just over 14 weeks.

They also state

Which contradicts the above advice (10-20% increase in activity every 1-2 weeks).

 

Or, to put it another way, it will take as long as it takes.

 

I sent a twitter DM to @PhysiosforME too!

So happy to have some good eyes checking up on these reports/manuals/‘recovery’ aids (thank you!)

 

"
Useful links
Action for children and young people with ME

The FITNET-NHS Trial of home treatment for teenagers with CFS/ME

CFS/ME research at the University of Bristol (overview)"

1st link goes to http://www.actionforme.org.uk/children-and-young-people

 

If you are reading this thread because you have a child with ME/CFS, or you think your child might have something that could be it, please read this instead: https://www.frontiersin.org/articles/10.3389/fped.2017.00121/full

 

Note the focus on fatigue and only lasting a few days. No mention of long term harm that exercise can cause. I've experienced harm from exertion that has lasted over a decade and is probably permanent. They clearly don't believe in ME but when asked they deny it and say "We're not saying it's all in your head". I call it gaslighting.

​

 

Yup. Make it much more than 30 years.