COFFI - The international collaborative on fatigue following infection

I have added a community note to Garner's latest post promoting the COFFI YouTube video.

Please rate accordingly!

https://twitter.com/user/status/1862123682966941885

 

Is this the big research he was going on about the other week?Please someone ask him why PEM is delayed?

 

This is probably what he was referring to on radio.

 

Is he still being silenced then?
You’d think they would want to give samples of blood to show Chris Ponting, it would be fascinating to see if they have the same patterns within as MECFS patients.

 

The most frustrating part is when scientists and medical doctors invoke predictive coding to explain sensations where there is no evidence for such predictive coding in humans. These people fail to understand that predictive coding itself happens for a reason, namely it is required when real-time prediction is required, such as for proprioceptive systems (including eye tracking), or speech perception related attention.

Pain and fatigue signalling does not require real time prediction.

It is strange why so many believe something with no evience.

Fact is that molecular mimicry has been shown to lead to T-cell tolerance of foreign antigens. Specifically, mimicry of Campylobacter Jejuni LPS to gangliosides leads to immunological tolerance of CJ LPS - which is the opposite of the putative mechanism for CJ associated Guillain Barre Syndrome. https://journals.asm.org/doi/full/10.1128/iai.70.9.5008-5018.2002

 

Posted online on April 3:

https://www.youtube.com/watch?v=q0JYwiOiZ8k

COFFI Consumer-Researcher Online Seminar IV
Where lived experience and science meet
Persistent symptoms after an infection: what is going on in the brain?

Persistent symptoms are part of post-viral fatigue, ME/CFS, and the post-covid condition. This seminar considers the wide variety of symptoms and problems encountered by patients, looks at the overall explanation from physiological stress response, and then considers how approaches may help people with symptoms.

COFFI is a global research collaborative dedicated to research to help explain, treat, and manage fatigue and persistent somatic symptoms following infection. The COFFI Consumer Advisory Group advises on COFFI’s research portfolio and promotes constructive public narrative between patients, researchers, and practitioners. These groups must work together to help people manage and recover from these conditions

 

"Where lived experience and science meet" -- wait, what was the motto of S4ME again?

That coffi party is so disingenuous, in so many ways.

(The S4ME slogan is better, of course.)