COFFI - The international collaborative on fatigue following infection

[Sean]

4. I object to this idea of a 'highly individual condition'.

A 'highly individual condition' seems to conveniently lead to 'a condition for which treatment is impossible to study in randomised controlled trials'.

And infinitely flexible 'treatment' regimes, in which if one approach doesn't work then you have an endless supply of minor variations on the mind-body theme. In this paradigm it is impossible to have tried enough, to 'give up', which is the greatest sin in their eyes.

This smells of bad faith interpretations of DecodeME, or a complete lack of understanding of genetics.

Or both.

 

[JellyBabyKid]

Has the website been shared:

EU Long COVID Project: Final Results after Four Years of Research - The Recovery Channel

The EU Long COVID project has published its final results after four years of research. Read the 7 key findings and watch our panel discussion

recovery-channel.org

It has this explanation of LC as prolonged defence response


There is also a FB page with 84 followers and an IG with 78 follows, and includes the clip stating that "of course the brain is biomedical"

Edit to add:

"No evidence was found that Long COVID is caused by microclots, gut dysbiosis, persistent viral infection or a distinct autoimmune disorder."

Based on what? Did they carry out research in each area? or just a (selective) literature search?

Second edit to further add;

"project has received funding from the European Union's Horizon Europe research and innovation program under grant agreement No 101057553. This work was supported by the Swiss State Secretariat for Education, Research and Innovation (SERI) under contract number 22.00094."

 

[Nightsong]

Has the website been shared:

The "Recovery Channel" site says that it is:

Registered in England & Wales under company number: 16946031

The associated Companies House listing shows two directors: Rachel Whitfield and Paul Garner.