Covid-19 vaccination experiences

hope it goes ok for you both @Trish

 

This is exactly my feelings on it too.

prayers for us all

 

ME is so variable that it is impossible to predict any one individuals response to any vaccine on any given day. Research may give us some idea of what is going on in our bodies but basic biology is more important for predicting how a vaccine might work than spending money on vaccine research because that is approaching from the wrong direction; we can make predictions about vaccine/ allergy interactions because we know something about the biology of allergies.

If we look at reactions to vaccines most people with ME are fine with them so there is no help there for why it goes so wrong for some. Past reactions don't appear to help as much as they should either way, good or bad.

It will always come down to a probability equation. How is my ME at this moment? What is my risk of getting the disease? What is my risk from having the disease? How is this vaccine affecting the general population?

There is very little certainty in ME

 

Will be interesting to see if this turns out to be a clue to different sub-types of ME pathogenesis. Eg more likely to affect those who are a "long COVID or similar / micro-clot aetiology" sub-type. Though I doubt it will be as straightforward as that.

 

All of the vaccines available are causing the same issues in people, it isn't just one specific vaccine that is the problem. And it isn't just people with ME who are having the reactions. Having met many people online who are having long term reactions to the vaccines, quite a few have been told by their neurologists that it wouldn't have mattered which type, brand, or dosing amount that they were administered, in all likelihood they would have had the same reaction. It is the body's reaction to the vaccine, rather than the vaccine itself that is the issue.

 

Isolation is a huge (or yuuge) health risk. It's also no way to go through life if one has any choice at all. It's something I'd rather have less knowledge of.

 

Which is odd, since it seems to be the covid/wuhan virus vaccines causing such reactions at far higher rates than those prior. Offhand/anecdotally, I heard from my GP that people who were otherwise ordinary (not edge cases like us) and who had no issues with the childood vx, flu shots, travel immunizations etc have had lingering effects from this vx. This is in a city where pretty much everyone got either Pfizer or Moderna, gov't bought the 'top of the line'. That in itself was well intentioned, but there's an old and surprisingly sentient saying about good intentions.
So perhaps something about the generation or existence of antibodies to the virus which causes 6 months + of systemic degradation. I hope it's not the B and T cells causing this, if so .... exit all hope. But .. some people just shrug off an actual infection and have strong immune memory, yet no side effects. It's like they caught a 48 hour cold, then done.

 

am not an md and all that, but I'd wait for a booster tested and approved on people sorta like us, or at least a booster targeted to the Delta family and offered in lower doses for the immuno-messedup. That's a new medical term as of this moment. Much as I think vaccines are an amazing plus for civilization, I not into hair of the dog medicine.

 

Life equals isolation.

Just the way it is, given people are what they are.

Every now and then I go a little nuts so need to realign myself, which requires some form of social contact every few years.

I wouldn't say it, isolation, is a health risk tho.

I didn't get vaccinated because of the virus, or any potential effects on me, I got vaccinated because I don't trust society to behave itself and could see a likelihood of severe and damaging discrimination against those who weren't vaccinated.

E.g. what it was decreed that social tenants must be vaccinated, as a condition of renting. I could easily see that happening if things had gone a little differently. Or if supermarkets insisted on it for delivery.

ETA - it seems Germany is going down the predicted path - the unvaccinated are to be banned from shops (presumably not all shops, just the ones, all the ones, in Germany).

 

I like the word immuno-messed up, sort of sums it up for us.

I had my second Pfizer 5 days ago after having a reaction to the first shot - complete numbness of the ulnar nerve distribution of my vaccinated arm and inflammation of the elbow bursa, lasted five days, annoying as very painful elbow which is hard to position for rest and sleep. I am on continuous anti-inflammatories and really what could they do, wasn’t worth the trip to the GP, I reported it to the vaccine monitoring agency. The main thing for me is that I had full movement and it went away….was more fatigued for a few days and usual myalgia/arthralgia.

So no repeat this time, just a sore arm at injection site. Hugely relieved. I did better than most of my “healthy” friends who took to their beds after the second Pfizer, and my partner who felt and looked unwell.

So I just don’t get it, immune systems, so individual.

 

Well so far the side effects haven't been too bad. I was having to take in big lungfuls of air in the evening and my chest felt tight - assume that's a heart issue. But it's gone today. Other than that a very sore arm and very hyper. 20 minutes after my jab I started feeling very full of energy, almost hyper active. Which has sort of continued. This is the same as my 2nd AZ jab. Used to preceed a crash but I think I'll be ok this time.

Legs felt very odd on friday evening, like the blood wasn't circulating as well as usual.

But all these symptoms apart from the chest issues (not enough for me to go to A&E mind) were very mild. Not really having any major issues. Had a pretty big headache day 1.

Day 2 went really well, don't feel sleepy - but do feel very grumpy, rather angry, probably immune mediated inflammation and a bit depressed too.

 

wondering how you're doing Trish? hope you're both ok

 

Glad you are both doing well @Trish.

 

@Trish, well i'm glad it hasnt been horrendous like some here have experienced! thats a relief, but it still doesnt sound that nice :/

hope you both feel better soon

 

I'm on Day 3 now, lots more energy today. Evening on Day 2 I had a full on viral attack of pain all over my whole body for about 3 or 4 hours - that was pretty nasty while it lasted.

Today feel really good, but I did start getting chest pain after moving some stuff into the living room. I do think I've got some chest or heart inflammation, but obviously can't be certain.

My arm feels loads better today too and no nasty pain when using it, it was extremely painful last night.