Current treatment approaches for paediatric CFS/ME, 2017, Loades, Bridgen and Crawley

[Andy]

Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME) is characterised by persistent fatigue, which has a significant impact on functioning and is associated with other symptoms. Table 1 shows the characteristic features of the fatigue and the commonly associated symptoms. Post exertional malaise is a particularly useful symptom. Children will describe this as an increase in fatigue and symptoms after doing more than usual. For example, feeling too unwell to go to school on Thursday and Friday having been to school at the beginning of the week.

If you really want to, the rest can be read at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939995/

 

[Esther12]

Seems a bit odd that all their claims are unreferenced.

 

[Barry]

Seems a bit odd that all their claims are unreferenced.

Given the origin, maybe not so odd.

 

[Andy]

Seems a bit odd that all their claims are unreferenced.

Considering who the authors are, I don't find it odd at all.

ETA: Cross-posted with Barry.

 

[Andy]

While I think of it, @dave30th , might be of interest to you?

 

[Trish]

Well, as a cruel and unusual punishment to myself, I've just read it. What a patronising and simplistic document.

Not a word about what to do if their magic and un-evidenced (they admit this) treatments don't work.

As for the statement in the opening paragraph:

Post exertional malaise is a particularly useful symptom.

Words fail me.

It doesn't read like a scientific document.

 

[Barry]

"Post exertional malaise is a particularly useful symptom"

Try it yourself and see EC. And yes, I know it's not quite how you meant it, but crass however you look at it.

 

[Trish]

I see it's from last September, but we don't seem to have spotted it then. Well spotted, @Andy.

 

[Jonathan Edwards]

It doesn't read like a scientific document.

It isn't. But I think part of that is that it is another example of a senior partner not bothering to read what is published in their name.

 

[Sly Saint]

Not new (2016, published 2017)but thought it worth adding here:
Practical Management of Chronic Fatigue Syndrome or Myalgic Encephalomyelitis in Childhood
Amberly Brigden, Maria Loades, Anna Abbott, Joanne Kendall-Boyd, Esther Crawley

• Department of Psychology

https://researchportal.bath.ac.uk/e...-of-chronic-fatigue-syndrome-or-myalgic-encep

http://adc.bmj.com/content/102/10/981

pdf of full thing here :
https://purehost.bath.ac.uk/ws/portalfiles/portal/158071295

(thought this was of interest at end):
USEFUL FURTHER READING
Action for ME’s webpage on children and young people https://www.actionforme.org.uk/children-and-young-people/introduction

Burgess M, Chalder T.
Overcoming Chronic Fatigue: A self-help guide using cognitive behavioural techniques.
London: Robinson; 2009.

NICE guidance
NICE.
Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis
and management of CFS/ME in adults and children (NICE guidelines CG53).
London 2007 2007. CG53.

Report to the Chief Medical Officer of an Independent Working Group
http://www.erythos.com/gibsonenquiry/docs/cmoreport.pdf