Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

[Luther Blissett]

So you're all been shadowbanned.

They don't have the honesty to delete the comments.

I have ethical questions about shadowbanning people with limited energy to write comments, along with trying to trick people with cognitive dysfunctions.

It completely ignores the difference between shadowbanning people who are trying to interact with good faith, and those with bad faith (spammers, trolls etc.)

Screenshot your comments for later use as evidence I say.

 

[Trish]

Ooo, look what I found, https://tedxuniversityofbristol.com/

Does this mean the University is the organiser of these TedX talks? I thought it was an independent group. That makes it even worse, as it gives an 'official' approval to the choice of speakers.
The only talks I can see on there so far are from 2015 and 2016.

 

[Binkie4]

Has anyone asked TEDX straightforwardly where the other 35 comments are? Or has that question been disappeared too?

 

[Valentijn]

Does this mean the University is the organiser of these TedX talks?

No, the university has a TEDx event which is separate from TEDxBristol.

 

[Esther12]

Does this mean the University is the organiser of these TedX talks? I thought it was an independent group. That makes it even worse, as it gives an 'official' approval to the choice of speakers.
The only talks I can see on there so far are from 2015 and 2016.

It could be TEDx Bristol and TEDx Bristol University are totally different events, or they could be linked in some way? No idea.

TEDx Bristol adopting this 'Dare to Disrupt' slogan while trying to hide critical comments on social media is so embarrassing. What must the people doing this think of themselves?

From our point of view, it's best to keep our criticism cautious and restrained imo, but they seem to be doing all they can to tempt people into mockery and disdain!

 

[Andy]

Does this mean the University is the organiser of these TedX talks?

Sorry, I didn't explain properly in my previous post. TEDxBristol and TEDxUniversityofBristol, at least at first glance, would look to be separate events. It wasn't my intention to suggest that there might be a connection between the two.

 

[guest001]

While TEDxBristol could potentially delete those comments that they find too disruptive, at the moment they are merely hiding them.

From

https://www.facebook.com/help/297845860255949

Maybe they should be screen grabbed and posted here?

 

[Esther12]

They sent this 9 days ago:

11 days ago, still no videos up. I wonder what's going on with them. Are we going to get a digitally altered video, with Crawley not saying what she said?!

 

[guest001]

11 days ago, still no videos up. I wonder what's going on with them. Are we going to get a digitally altered video, with Crawley not saying what she said?!

Her 'original' has been cached hasn't it?

 

[MEMarge]

Yes. JtheJ or someone else has it. Hopefully TEDx Bristol will not be prepared to make it available.

 

[Esther12]

Her 'original' has been cached hasn't it?

I downloaded a copy and I think that there's still a live link somewhere in this thread too.

 

[EzzieD]

Yes, the link in this older post is still live: https://www.s4me.info/index.php?thr...rupting-your-view-of-me.286/page-6#post-11328 (And I, too, just happen to have a downloaded copy of it, because it wouldn't play in my browser back then for some reason [it does now] so I had to download and watch offline.)

 

[guest001]

Good news re caching. Always best. Certain people have a habit of changing tune and denying they ever said 'this' or 'that'..... (admittedly not a novel observation...)

 

[Inara]

Professor Esther Crawley took the opportunity to speak at the event about how to disrupt our views of ME and the tough choices that many pioneers of medical research have to make.

Huh? Did I miss something? Since when is Mrs Crawley in medical research? Isn't she doing psychology stuff? (Just had a look at her CV - she actually has no psychological background there. Very confusing!)

 

[Inara]

One minute we talk too much and "harrass" them the next minute we dont have a voice and need them to speak for us, I wish they would make up their mind.

Why should they make up their mind when they can have everything? Just interpret words as needed...as "experts" their interpretation mirrors always reality. No proofs needed.

 

[guest001]

Possibly slightly off topic (and apols if it's been posted elsewhere), but maybe this might make some younger researchers pause for thought before working with a certain cabal of BPS School adherents.

Retraction Watch
Tracking retractions as a window into the scientific process

Work with someone who later commits misconduct? You may pay the price

http://retractionwatch.com/2017/12/18/work-someone-later-commits-misconduct-may-pay-price/

 

[Joh]

The video is now on Youtube:

It's possible to comment.

 

[Esther12]

It's possible to comment.

If commenting, important to be particularly cautious and rigorous (and ideally polite!) given the prejudices Crawley has been promoting about her critics.

 

[Allele]

"it's hard to know what the truth is"

yeah, thanks esther, thanks for that.

 

[Andy]

Remember, if you have a Google account (Gmail, YouTube, etc) you can at the very least down-vote the video, even if you are not up to commenting.