Hello
@bobbler and welcome to the Science4ME

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Firstly I should say that I don’t have a medical or science background, so I learn from others here.
I’m sceptical of any claims that E.Crawley makes for her work as the research she has published reveals problems under scrutiny. She has a track record of producing flawed quality research and spinning results and ignoring legitimate criticism. The comment I made referred to a small bit in an article that was just a piece of promotion for her work and clinic and there’s no evidence in it. Her research and methods do speak for themselves though, and there is information about it on the forum.
My post you’re referring to was made a long time ago so hard for me to think back. I think I was generally sceptical but conceding (in a flippant manner) that maybe some teenagers with fatigue did actually report being helped. But even that isn’t a straightforward thing to claim because there is no evidence given about those patients mentioned in the article to support what she says. For all we know they may not have had any other symptoms than fatigue, so shouldn’t be assumed to be same as ME/CFS. There are other possible issues too, just as for examples : some teenagers might just tell everyone what they want to hear, or it’s their wishful thinking, or perhaps the improvement would have happened anyway. So Crawley’s claim in the article can’t be taken seriously to mean anything about the wider group of teenagers or adults with ME/CFS. The place to look for it is in her research, and it’s a long time since I read any of that.
I’m old enough to remember this too. Not having to struggle to get 2 of my children out of bed when they were teenagers would have been wonderful! (They don’t have ME). I really don’t know if that research into healthy teens would say anything useful to compare with teens with ME/CFS.
I personally think, as a non medical person, that if you are ill and your body sleeps more then that is what your body needs, provided other bodily needs are met. I know that’s not possible for a lot of people. I’m so sorry your experience with sleep therapy made you worse. I hope you have found ways to manage your ME symptoms that work better for you.