Esther Crawley

Discussion in 'UK clinics and doctors' started by Sly Saint, Nov 20, 2017.

  1. Hutan

    Hutan Moderator Staff Member

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    https://www.researchgate.net/profile/Esther-Crawley
    Screen Shot 2024-06-08 at 9.50.12 pm.png

    Publications 2023 to the present:

    Graded exercise therapy compared to activity management for paediatric chronic fatigue syndrome/myalgic encephalomyelitis: pragmatic randomized controlled trial 2024 (the exercise therapy was found to not be useful)

    "not one size fits all” The challenges of measuring paediatric health-related quality of life and the potential role of digital ecological momentary assessment: a qualitative study 2023

    Investigating the factors associated with meaningful improvement on the SF-36-PFS and exploring the appropriateness of this measure for young people with ME/CFS accessing an NHS specialist service: a prospective cohort study 2023

    Correction to: Anxiety in children with CFS/ME 2023

    Correction: The impact of CFS/ME on employment and productivity in the UK: a cross-sectional study based on the CFS/ME national outcomes database 2023

    Correction: What stops children with a chronic illness accessing health care: a mixed methods study in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) 2023

    Long COVID in Children and Youth After Infection or Reinfection with the Omicron Variant: A Prospective Observational Study 2023

    Digital tools for assessing chronic pain in children (5–11 years): Systematic review 2023

    Corrigendum to “Chronic Fatigue Syndrome (CFS) symptom-based phenotypes in two clinical cohorts of adult patients in the UK and The Netherlands” [Volume 81C (2016) 14–23] 2023

    Correction: Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME: triangulation using three different methods 2023

    Patient-centred outcomes following non-operative treatment or appendicectomy for uncomplicated acute appendicitis in children 2023
     
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  2. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    We can live in hope, though retirement from a specific job does not always mean retirement from the field altogether.
     
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  3. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    She would be sixty plus I think, and conceivable even 65.
     
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  4. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Wow, this could be Brilliant news, hopefully she has retired from any medical interaction with children.

    The Bath Clinic she runs/?used to run, now makes no mention of her, still the same old info and leaflets:
    https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/leaflets.asp?menu_id=1
     
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  5. Kitty

    Kitty Senior Member (Voting Rights)

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    And therefore quite expensive to employ. Universities are trying to cut costs, I know three people who've been offered early retirement packages. I think they're between ages 59 - 63.
     
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  6. Yann04

    Yann04 Senior Member (Voting Rights)

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    [retirment] party? celebrating the fact that less children will be harmed…
     
  7. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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  8. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Let's hope she's not one of those doctors who needs to retire at 60 for pension purposes, then after a certain period, pops up again, eg in private practice.
     
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  9. Turtle

    Turtle Established Member (Voting Rights)

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    But the people Esther Crawley has influenced are all still out there.
     
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  10. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Yes and the leaflets that are linked on the clinic website, #204 seem to be unchanged
     
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  11. MEMarge

    MEMarge Senior Member (Voting Rights)

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    I've asked on a parents' site if anyone has seen Crawley recently, linking to the acknowledgement in the BMJ paper.

    Was shocked, but not terribly surprised that currently, several families are having their youngsters diagnosed as FND!!!
     
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  12. Yann04

    Yann04 Senior Member (Voting Rights)

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    It feels like a conspiracy, but there really is a push from the BPS crowd to “replace” ME with FND. It is their same tactic as usual, broaden the definition of a condition so much that it doesn’t mean anything anymore.
     
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  13. Andy

    Andy Committee Member

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    Dave Tuller reports on Twitter that
    "Professor Esther Crawley apparently relinquished her right to practice medicine last September, according to the UK's General Medical Council, which oversees physicians. No explanation provided. 1/ gmc-uk.org/doctors/3545946"

     
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  14. Joan Crawford

    Joan Crawford Senior Member (Voting Rights)

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    Yes, this is sadly a growing trend.
     
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  15. Amw66

    Amw66 Senior Member (Voting Rights)

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    New ducks being lined up .
     
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  16. Sean

    Sean Moderator Staff Member

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    Now that is interesting.
    Yep, as long predicted here, they are doing a bait and switch, simply swapping ME/CFS for another, more psychosomatic-friendly, diagnostic label to keep us under their control.

    They really do think they own us, and nobody, not even the highest levels of their own profession, and least of all patients, have any right to say otherwise.
     
    Last edited: Jun 11, 2024
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  17. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    I note that the RUHB page for the Paediatric Specialist Chronic Fatigue service does not appear to list the name of any new lead paediatric consultant: https://ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp

    The only current paediatric consultants I can find associated with the Bath paediatric CFS service are:

    Dr Jan Cribb and Dr Rachel Chute (Dr Chute was appointed as a Consultant Paediatrics/Psychiatrist on 10th. May 2022. Dr Chute was already working as a Locum Consultant at the hospital).


    This Job description and Person spec document (January 2024) for a Locum Paed (but not for a position within the CFS service, per se), also does not mention any paediatric lead consultant for the CFS service. See Job Description and Person spec document under heading: Consultant Staff (and special interests)


    "Chronic Fatigue Service

    Dr Jan Cribb
    Dr Rachel Chute"

    https://www.jobs.nhs.uk/candidate/jobadvert/C9427-24-0035


    Possibly the Trust has not yet recruited a replacement clinical lead, or if they have, the replacement has yet to take up the position; or possibly they intend to operate the service without a clinical lead to replace Prof Crawley. (Neither Dr Cribb nor Dr Chute is designated as clinical lead.)
     
    Last edited: Jun 11, 2024
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  18. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    These Bath Chief Executive’s Report documents include references to consultant recruitment. This document, below, mentions the appointment of Dr Rachel Chute (under section: 16. Consultant Appointments) in May 2022:

    https://www.ruh.nhs.uk/about/trustboard/2022_07/documents/08.pdf

    I have been looking at Chief Executive’s Reports for the period 2022 to 2024, to see whether there is any reference to the resignation of Dr Crawley and the appointment of a replacement clinical lead.
     
    Last edited: Jun 11, 2024
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  19. bobbler

    bobbler Senior Member (Voting Rights)

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    "appointed as a Consultant Paediatrics/Psychiatrist"
     
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  20. bobbler

    bobbler Senior Member (Voting Rights)

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    Interesting that scanning the same document I found the following:

    I wonder how, given the suggestion is that the MEA PROMS will include service feedback, this will 'marry' with that?

    Sounds a lot more what service assessment normally is based on if you actually are focused on reactive and swift improvement - qualitative boxes etc
     

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