Kiristar
Senior Member (Voting Rights)
I was very consistent and the issue with my loss of functions was disease processes first and foremost.
One of the ways I can (with hindsight) track the evolution of my me/cfs is specific junctures where I suddenly saw I couldn't exercise to the same level, but it happening much more suddenly than deconditioning could possibly have happened at the time in my life context.
A hill I could always cycle up non stop then suddenly couldn't. (at the peak of my fitness and 19)
PEM malaise hitting me half way through a hiking holiday I couldnt have even started if I'd been deconditioned
An ability to hike for km with my border collie then suddenly crazy disproportionate pem on the sofa for the rest of the weekend. - That's when I knew I was ill and went to the Dr.
With me PEM from the disease came first and shrank the limit of my function.
It may be there now I'm severe but I don't even have that headroom pem hits first.
One of the ways I can (with hindsight) track the evolution of my me/cfs is specific junctures where I suddenly saw I couldn't exercise to the same level, but it happening much more suddenly than deconditioning could possibly have happened at the time in my life context.
A hill I could always cycle up non stop then suddenly couldn't. (at the peak of my fitness and 19)
PEM malaise hitting me half way through a hiking holiday I couldnt have even started if I'd been deconditioned
An ability to hike for km with my border collie then suddenly crazy disproportionate pem on the sofa for the rest of the weekend. - That's when I knew I was ill and went to the Dr.
With me PEM from the disease came first and shrank the limit of my function.
It may be there now I'm severe but I don't even have that headroom pem hits first.