Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

Hummmmm, ....as we are embroiled with actual "implementation" already in Suffolk NE Essex, ... it would be wise to alert the CCG Integrated Care System and Transformation Teams & Contracts Commissioning TEams who are organising new contracts NOW... to be aware of this and to use it to guide process....?

We have a trusted and responsible set of NHS officers here so could test the system, but not if they are unaware and being left to work in the dark, surely...?
THis very much strikes me as an afterthought cover our backs exercise..?

Am I right.

Not doing this until March 8th 2022.....( see document properties) is a bit back of a fag packet to me.
To not alert other Stakeholders directly is ill advised and very poor form in my view!

We have been Co producing ( a legal requirement for NHS under 2014 Health & Care Act, according to Healthwatch.....) now for 5 months- post NICE Guidance being published.

 

I think if you create a copy of the document it sets that as the start date, if you had a rough draft and wanted to keep that for records, you'd create a new copy and work from that (well that's what I do).

 

You can't implement anything until there is a wholesale staff education programme. All types of staff.
Timescale and resources require detailing.
Otherwise iatrogenic harm is written in.

 

It doesn't make sense for the guideline to be reviewed by the panel unless they overlooked significant higher costs than initially considered during development, but that comes across as sloppy on their part.

Sure seems handy to be able to do that to large numbers of patients asserting their rights to overdue healthcare provisions NICE effectively created.

Important points are raised here. Hopefully, NHS and friends will provide timeframes otherwise there is no plan. Just saying things will take time instead of identifying solutions indicates what's likely going on.

 

I agree in terms of services re treatment.

However the guideline, according to my memory, had a whole host of things about other services, of us getting parity with other conditions, things like getting appropriate social, acre, and financial support.

Implying that the current discrimination against ME and pwME, by the state and its institutions, should stop.

The financial implications, relative to any notional additional costs to the NHS (which as there is no treatments I would expect to be low), seemed potentially vast, as most pwME seem to get squat, relative to pwMS or pw stubbed toes.

 

The other thing to bear in mind is that a number of stakeholders complained that the new GL would be impractical and too expensive. So they may have done this out of an abundance of caution to answer those claims.

 

Moved posts

Have S4ME finalised their comments to be submitted by Jonathan?

I am a bit confused as a NICE Stakeholder independent of S4ME...
I was told elsewhere the Implementation Statement draft was 'confidential' and could not be shared or responded to.
As I was not advised of it as a formal stakeholder, what can or can't I do?
Please enlighten ME!

 

Is this what it is all about?

file:///Users/barb/Downloads/agenda-and-papers-march-18-1.pdf

Adoption and impact March 2018

75.Implementation:

NICE guidance and advice needs to be effectively implemented to have any impact on the health and wellbeing of the population and the quality of care provided. Our job is to produce what is needed,when it is needed and then do all we can to encourage and support those who are in a position to apply it. This is a complex, challenging task for which an understanding of the evidence for effective ways of overcoming obstacles is an essential prerequisite. There is a growing body of research evidence and an accompanying literature on not merely what change is desirable in health systems but how to achieve it so it is embedded and sustained. It is possible that the messages about how to effect change may not be getting across to policy-makers and managers in ways which help them or in terms they find useful. NICE needs to be both a user of, and contributor to, the evidence on how to effect large-scale transformational change in complex health systems.To facilitate this process, NICE has an ongoing programme of implementation support to encourage the uptake of guidance and quality standards, including tailored advice for the sustainability and transformation partnerships (STPs).

76.The implementation strategy has five specific objectives. To:produce guidance and standards that are fit for the audience’s needsensure relevant audiences know about the guidance recommendationsmotivate and encourage improvementhighlight practical support to improve local capability and opportunityevaluate impact and uptake.

77.NICE has an Implementation Strategy Group comprised of academic leaders in the field of health, care and social science and public involvement who help us to achieve the aims of the implementation strategy. The group advises on new areas of implementation science and engaging with the research community to stimulate evaluation of significant areas of implementation and improvement science to inform our work.

78.NICE provides or endorses relevant implementation support products for a range of purposes, including support for commissioning, support for service improvement and audit,and support for education and learning, all with the aim of making implementation more straightforward at a local level. Some examples of support from NICE include the web based ‘Into practice’ guide for organisations on how to put evidence into practice,a forward planner updated monthly to summarise our future work programme, provide indicative costs and highlight links with the tariff, and a Local Practice Collection which includes Shared Learning examples and Quality and Productivity case studies on the NICE website.

79.We also have a regional field team that provides practical support and advice to NHS trusts, Academic Health Science Networks, CCGs, local authorities, social care providers, sustainability and transformation partnerships, and accountable care organisations and systems, particularly in relation to effective processes for implementation and information about NICE. During 2018-19 we will continue to align the work of the field team where relevant with the regional structures of NHS England and Public Health England along with prioritised local engagement activities. This will continue to facilitate a strategic approach of working more closely with partner organisations, and of using new technologies such as webinars, to increase the team’s impact.

80.We also have an active programme of strategic engagement at a national level, as well as locally and regionally. The focus of the national level programme is to ensure that the evidence base as set out in NICE guidance and quality standards is embedded inactivity with relevant third parties. Progress in engagement and its effect on the use of NICE guidance and standards will be reported against standard metrics and regular uptake reports. This will also include information that NICE has about how our recommendations for evidence-based and cost effective care are being used

 

I had no message about confidentiality.

 

It almost certainly is. However, since the NHS at present couldn't implement an extended session of imbibition of alcohol in a fermentation plant I cannot see the point of any of that verbiage.

 

In 'V for Vendetta', ...... 'This veritable vichyssoise of verbiage veers most verbose....' my husband says, (surely) the most appalling and abysmal avalanche of alliteration....

As for 'an extended session of imbibition of alcohol in a fermentation plant I cannot see the point of any of that verbiage." .... comes a close second!