Kara Jane Spencer, UK singer with severe ME

BBC News:

Kara Jane Spencer: Severely ill singer who recorded hit album dies - BBC News

https://www.bbc.com/news/uk-england-derbyshire-64160788


The ME Association:

BBC News: Kara Jane Spencer: Severely ill singer who recorded hit album dies | The ME Association

https://meassociation.org.uk/2023/0...erely-ill-singer-who-recorded-hit-album-dies/


On Twitter

On Mastodon

 

Tributes to 'warrior' woman, 32, who died after battle with chronic fatigue syndrome
Kara Jane Spencer was diagnosed with the illness 15 years ago

https://www.liverpoolecho.co.uk/news/liverpool-news/tributes-warrior-woman-32-who-25926032

 

I know it's meant as a nice gesture, is even a nice gesture. But the 'warrior' bit just grates me.

 

“The family hope a world-wide live stream of the funeral service will be available on Kara Jane’s YouTube channel – but they need at least 1,000 subscribers to make it happen. It doesn’t cost a penny to subscribe!”

Subscribe at: https://youtube.com/@karajane3855

 

Now at 546 subscribers so up just over 100 since this message went out. It is going to be a push to reach 1000 by February 1.

 

Subscribed but it's at 547. +1. Will need some significant additional support to reach the goal. Also I didn't know you need 1000 subs to stream?

 

Kara Jane died of M.E. When will we take post-viral illness seriously?

"Two days into 2023, the friends of bedbound musician Kara Jane, 32, shared the heartbreaking news that she had sadly passed away.

“In the end, her body was too frail to survive,” they wrote on her website that evening. “Her spirit remained strong until the last, and she faced the end with the same incredible courage that she showed throughout her illness.”

Kara had a severe form of the post-viral illness Myalgic Encephalomyletis (M.E.), which left her bedbound, unable to walk, and in need of full-time nursing care.

As an M.E. patient myself, I’d been aware of Kara via our overlapping Twitter networks for a while. But as a talented musician, she first came to prominence in May 2020, when she put out a call online for someone to help her finish her album from her bed."

https://www.theunwritten.co.uk/2023...en-will-we-take-post-viral-illness-seriously/

 

Farewell To Kara Jane – Shirebrook’s Standout Musical Genius!
February 2, 2023
https://meassociation.org.uk/2023/02/farewell-to-kara-jane-shirebrooks-standout-musical-genius/
Report on funeral service