Long Covid in the media and social media 2022

Healthwatch
What people told us about Long Covid

Report – 30 May 2022

https://www.healthwatch.co.uk/report/2022-05-30/what-people-told-us-about-long-covid

 

Of course, a vital role, what could possibly go wrong???

"Thank you for celebrating National Physiotherapy Month with us! We hope you have gained some insight and knowledge on the vital role Physiotherapists play in the treatment of Long COVID."

 

Here is what the Canadian Physiotherapy Association promoted about PESE in people with Long Covid:

https://world.physio/sites/default/...1-InfoSheet3-Fatigue-and-PESE-Final-A4-v1.pdf

 

Note: the previous summary is from the " World Physiotherapy " * which is included in the document Rehabilitation of clients with Post Covid-19 condition (long COVID) from the Canadian Physiotherapy Association. This last doc. can be viewed in full here: https://physiotherapy.ca/rehabilitation-clients-post-covid-19-condition-long-covid

*https://world.physio/wptday

 

Beloved Principal Who Fought DeSantis Over In-Person Learning Dies of Long COVID

https://news.yahoo.com/beloved-principal-fought-desantis-over-215024685.html

Edit - found a slightly longer article about Jim Jackson which uses the term "long-term COVID" so I'm not sure now what his diagnosis was:

https://www.tallahassee.com/story/n...-principal-jimbo-jackson-has-died/9976263002/

 

I don't see anything about children in this document?

 

Potentially significant. The chairman/big boss of the Los Angeles Times, a multibillionaire physician, seems rather alarmed about Long Covid. He has the kind of media influence, the LAT is a huge publishing network, to affect public perception.

In the end it's all about who gets sick, who they know, who they are, how they can influence things. It's always the case so I doubt there isn't some personal connection here. There needs to be, ugh... influencers, who change public perception away from the constant minimization coming out of medical and public health institutions.

Medical research and healthcare are basically a popularity contest at times. What a disaster. TikTok could literally have more direct impact than the main medical institutions in the world, who have so far chosen to simply do nothing and ignore the whole issue.

Moderator note - because the interview deals at some length with LC we are allowing it, but members are reminded of the 'no politics' rule and other issues raised are outside the scope of this forum and not to be discussed.

 

Two million people in UK living with long Covid, find studies
Nicola Davis Science correspondent
Wed 1 Jun 2022 16.19 BST
https://www.theguardian.com/world/2...ople-in-uk-living-with-long-covid-say-studies

Includes comment from Dr David Strain, Layla Moran and Professor Danny Altmann.

Edit: further discussion here.

 

https://twitter.com/user/status/1532083500303663104

 

How 'reassuring'

 

Disappointed that Dr. Khan is promoting his personal discount code for a questionable medical test.

IMHO, this isn't the way forward.

https://twitter.com/user/status/1532046366700355584

 

If I understood correctly, this is a promotion for a) a microbiome test, b) an alleged treatment for LC and many other conditions and also c) a study[*] you can participate in if you paid for the test and the treatment.

https://biomesight.com/blog?category=research

Thanks for highlighting @ME/CFS Skeptic and thanks to the few (too few so far) people on Twitter asking critical questions:

[*] Couldn't find a reference to a study protocol on their website, only 'updates' on how successful they think their results are already (study still going on).

 

From the website providing the microbiome test (post above) :

"I am excited to provide the first update on our Long-term COVID-19 study. Firstly, a big thank you to all participants and the long COVID communities for supporting this study and thereby enabling what I believe to be the current largest gut microbiome study on long COVID."

"I should state that these findings have NOT yet been peer reviewed and our study and analysis process is evolving and ongoing. So please consider these draft findings."

 

‘What do I have to lose?’: desperate long Covid patients turn to ‘miracle cures’

"Few of the 23 million Americans with lingering symptoms are getting answers – in this dangerous void, alternative providers and wellness companies have created a cottage industry"

https://www.theguardian.com/world/2...tients-alternative-medicine-coronavirus-cures

 

You can't blame patients for trying quack treatments for Long Covid when mainstream medicine is also offering quackery. In particular, they are still assuming that 'rehabilitation' is useful:

There's a mention of ME/CFS at least:

 

Source: Royals Blue
Date: June 1, 2022
Authpr: Lily Adric
URL:
https://www.royalsblue.com/persistent-covid-is-chronic-fatigue-according-to-an-expert/


Persistent covid is chronic fatigue [article uses CFS], according to an expert
—-

Anyone know which journal article is referred to?

 

The Forever Disease: How Covid-19 Became a Chronic Condition
https://newrepublic.com/article/161102/covid-19-long-haulers-chronic-disease-health-care
(Paywalled but it says I can read 3 free articles per month)

Long-form article so mostly skimmed. Not bad overall, mostly on the overlap with ME and how denial left us with nothing to work with here.

 

I put the link into Twitter and lots of results came up for the start of February, 2021. Is it definitely new? Don’t want to use up my free articles.