Long Covid in the media and social media 2022

Highly validating and resonates with my own early illness experience. Both of our experiences completely contradict the biopsychosocial model.
The BPS model:

An actual patient's words:

 

“POST-EXERTIONAL MALAISE meaning that symptoms get worse after physical or mental effort.”

 

Long Covid: Urgent research needed into effects of illness on children

6minute segment
https://www.channel4.com/news/long-covid-urgent-research-needed-into-effects-of-illness-on-children

 

Young Scots teacher left unable to read books after crippling long covid battle

https://www.dailyrecord.co.uk/news/scottish-news/scots-teacher-left-unable-read-28545918

I wonder how many LC patients are being diagnosed with ME...... but I think the gov recently said (qs in parliament thread) that they have no intention of collecting this data(?)

has any organisation (in the UK ) tried to set up some kind of online registry?

 

If recovery means stops experiencing the symptoms of xyz then everyone recovers, eventually.

From everything.

Of course the length of time varies, for some it could be 200 years, but eventually, no more symptoms.

This is at least my understanding of in time.

 

Sweden: 24 November at 6pm, Instagram Live on long covid by cardiologist dr Marcus Ståhlberg (in Swedish). Organised by Karolinska Institutet, the Swedish Covid Association, and the Pandemic Fund.

 

Mentions Long Covid

The puzzle of UK’s half a million missing workers

For the first time, more than 2.5 million people in the UK are out of work because of a long-term health problem. The number has jumped by half a million since the start of the pandemic - but, BBC News analysis reveals, the impact is spread unevenly across the country, with some regions and types of job far more affected.

Something strange seems to be affecting the UK workforce.
The country is in its fourth year of sharply rising chronic illness.
The highest rates are among 50- to 64-year-olds - but there have also been significant increases in some younger groups.
Although the link is not conclusive, the Bank of England has said record NHS waiting lists are likely to be playing a "significant role".

But the largest increase in long-term sickness is in the catch-all "other health problems" category, likely to include some of those with "long Covid" symptoms.

https://www.bbc.co.uk/news/health-63625989

 

https://twitter.com/user/status/1595444698931396608


Link

https://talkingpointsmemo.com/feature/long-covid-workforce-economy-labor

 

https://twitter.com/user/status/1595231590736543744


Decades and millions wasted on a psychosocial model have not come up with anything as relevant as this small nugget from someone who is new at this. Regardless of anything, all of their work combined has never managed to grasp the reality of chronic illness anywhere near close to this errant thought.

Medicine's blanket dismissal of the lived experience of patients is one of the worst mistakes in the history of our species. It has stagnated the very profession we depend on to be healthy.

 

Latest US census reports 4.5m with Long-term symptoms reduce ability to carry out day-to-day activities.

Week 50 Household Pulse Survey: October 5 - October 17
https://www.census.gov/data/tables/2022/demo/hhp/hhp50.html


Health Table 11. Duration of COVID-19 Symptoms and Ability to Carry Out Everyday Activities, by Select Characteristics: United States
https://www2.census.gov/programs-surveys/demo/tables/hhp/2022/wk50/health11_week50.xlsx

 

Your first link needs fixed. It points to the same URL as the second one.

 

Thanks, fixed.

 

Eleonore Léone lider av postcovid: ”Tungt att lyfta ett finger”
https://www.svt.se/nyheter/inrikes/eleonore-leone-lider-av-post-covid-tungt-att-lyfta-ett-finger

 

Professorn om post-covidsjuka: De är inte inbillningssjuka
https://www.svt.se/nyheter/inrikes/professorn-om-post-covidsjuka-de-ar-inte-inbillningssjuka

More here, on the news/Aktuellt (video, 13 minutes, in Swedish):
https://www.svtplay.se/video/86Y2RW...6Y2RW7&position=1384&highlight=postcovid-1384

It surprises and disappoints me that prof Petter Brodin, who has previously been involved in ME research, says in the interview that he's feeling very hopeful that they are going to be able to cure these conditions in 1-2 years (he used the expression "nåt år" in Swedish). Unrealistic expectations are not helpful.

He also talked about what they believe is the cause of post-covid: the fact that the body always has to make adjustments when it gets an infection. How hard should the immune system try to get rid of the infection? Trying too hard can be harmful too. The hormones, heart and nerves sometimes stop regulating themselves normally, and they believe that's the cause of post-covid.

He talked about other kinds of post infectious conditions, but did not mention ME.

Talking about effective treatments and a cure, he says that they believe viruses remaining in the body is one factor and they are working on treatments to remove them.

 

Good post. Not strictly LC . Mods feel free to move if better thread elsewhere
https://twitter.com/user/status/1595915989782102016

 

It's been over 2.5 years and no progress was made at all, medicine still hasn't even caught up to the 90's on this issue. The blatant refusal to even try is evident.

Very bad idea to make such promises when the real work hasn't even started yet at the scale it's needed. No more hopium, damnit.

 

Washington Post: Desperate covid long-haulers turn to costly, unproven treatments

Regular link (paywall)

https://www.washingtonpost.com/health/2022/11/25/long-covid-treatments-unproven-brain-fog/​

Gift link (no paywall for 2 weeks)

https://wapo.st/3V9Kz8U​