Long Covid in the media and social media 2022

That is very unfair to slugs, which despite their slowness do not simply slime around in circles. Or they'd die, so, you know, they clearly don't do that.

 

https://twitter.com/user/status/1596295752820568064


Dianna Cowern is a science youtuber known as The physics girl. She knows most of the other pop science youtubers, they will likely watch it if she makes this video. If anyone remember, Hank Green, of scishow, completely flubbed LC at first in a tweet thread. I think there was a later video that wasn't all awful, but still not there.

 

https://www.independent.ie/irish-ne...athon-in-three-and-a-half-hours-42175070.html

 

News article about a new Swedish study:

Ny undersökning: Två av tre covidsmittade inom vården fick långvariga besvär
https://sverigesradio.se/artikel/ny...idsmittade-inom-varden-fick-langvariga-besvar

Forum thread about the study here.

 

At this point it has to be said: medical and public health authorities have made lying about Long Covid not just normal but essential. Telling the truth about medical issues should not be a radical act, and yet here we are, in a state where lying is the only acceptable thing they will do about it. This is as pervasive as how military secrets in a time of war are kept and the public lied to. Except there is no state of war, only lies.

The only questions that follow is what else is being lied about, and how much of it there is. But for sure, there has to be a huge amount for such blatant lies to become fully normalized.

https://twitter.com/user/status/1596473850421805056

 

Speaks for itself. There is no issue any profession has been dealing with in the last half-century where there was such a wide chasm between reality and what experts are saying and doing, this here basically defeats the entire purpose of having experts at all, if they're going to just screw it all up completely. Literally two mutually exclusive realities, only one is actually lived, the other completely imaginary. All made even worse by the fact that the imaginary alternative is literally about the lived reality being imaginary.

https://twitter.com/user/status/1596453346713686017


(Spoiler, and for those who don't use twitter: most of the responses are literally the ME criteria and explicitly reject the BPS version of depression/anxiety/deconditioning)

 

Not sure if good or bad, but many steps are being missed here. There is no going from decades of denial and discrimination, some of it aggressive to the point of being hostile, to a coherent system that helps patients instead. This is a heavily-documented disaster where the entire conflict was over this, and we were right all along. The issue is not mere attribution of who was right, it's that disastrous harm was committed out of that conflict.

 

Exactly what I am concerned about. Getting attention is not necessarily good if it's from people whose every incentive works to sabotage this. Neurology will have to address the pseudoscience they built at some point, but right now we are basically in the peak era of psychosomatic garbage.

And sadly in medicine, popular and wrong is popular, while right and unpopular is unpopular. Like everywhere else, because truth is a social construct and politics get in the way of everything when there isn't math to end the argument.

Because even to this day and through the entire Long Covid era, neurology is most often cited as, no better way to say this, a bunch of jerks. Consistently the worst discipline when it comes to gaslighting and disrespecting patients. Even ahead of psychiatrists.

 

Just to point out.. neurologists don’t need a gravy train. There is a massive shortage of neurologists globally incl UK and US. Not enough to deal with the existing neurological diseases like MS, Parkinson’s, dementia’s — all of which are exploding in numbers, and the last two are made worse or brought on by Covid also. They have not been trained to help post viral illness so not sure I’d hold it against them. They are really specialists in movement disorders and dementia.

 

https://twitter.com/user/status/1597030963090927616

 

@Jonathan Edwards Rae Duncan seems to be an established NHS cardiologist, and is giving credibility to the fibrin blood clots theory. Does this mean it is gaining acceptance more widely? Is she basing her ideas on any further studies done in the UK I wonder?

 

Long Covid highlights plight of illnesses that wax and wane

"Employers are used to accommodating fixed disabilities, such as wheelchair users, but the challenge of variable illnesses has only recently come into focus"

https://www.ft.com/content/0a23c4f7-154d-4f61-b323-9a4304c5d791

 

Long COVID May Catalyze New Treatments for Chronic Pain and Fatigue

https://www.thinkglobalhealth.org/a...alyze-new-treatments-chronic-pain-and-fatigue

 

https://twitter.com/user/status/1597333109812637696

 

another dreadful photo

 

This one is truly the worst one I have seen for a while. Yawning?? Fake yawning?
I would write to them, but cannot at present.

 

https://twitter.com/user/status/1597764111970209792