Maeve Boothby O'Neill - articles about her life, death and inquest

Copied from another thread and apologies if that has been discussed elsewhere:

How is the nutritional status assessed?

Question prompted by...

So on what did Dr. Warren base his assessment/ on what should he have based it? Did they measure all relevant parameters that they should and could have?

E.g. did they monitor her weight or if that wasn't possible due to inability to stand, did they acknowledge that and measured surrogates?

And...

Is this sufficient for assessing hydration ?

Edit: And did the doctor in charge at her first admission to hospital at least recommend monitoring her nutritional status and what to do if it worsened ?

 

Trial By Error: Guardian Publishes Response to Boothby O’Neill Inquest from Ranking Member of the CBT/GET Ideological Brigades

My heart sinks every time I see another ridiculous article from a member of the CBT/GET ideological brigades. They repeat the same bogus arguments that we’ve heard for years—arguments that have already been refuted time and again. So let’s take a look at the most recent iteration of this tiresome dog-and-pony show—physician Alastair Miller’s reflections in The Guardian on the inquest into the death of Maeve Boothby O’Neill. (I have been attending daily in County Hall in Exeter, a university town in southwest England; I posted my thoughts on the first week of testimony here.)

https://virology.ws/2024/07/29/tria...g-member-of-the-cbt-get-ideological-brigades/

 

Great looking forward to reading

Exeter is a city btw (it has a cathedral)

 

In my case, every time I go to the clinical nutrition unit at the hospital, they measure the following biomarkers:

- Weight & BMI
- Extensive bloodwork with a focus on electrolytes & minerals, vitamins and hormones (complete blood count, ionogram, liver, kidney, lipid & thyroid panels, etc)
- Electrocardiogram
- Indirect calorimetry to assess energy expended (i.e. calories burned) at rest
- Body tissue composition with bioimpedance electrical analysis
- If needed, a Xray to check the position of my NJ tube

Out of those, my BMI and bloodwork seem to be the most important parameters for the doctors.

 

Ha! As a native New Yorker, it's kind of a town to me! But, yes, I guess I should call it a city next time.

 

Ooooh Dave, places that are cities have a real “thing” about being a city. Originally they would need to have a Catherdral or a University, so there aren’t “university towns”. The requirements have changed since. Each year there are towns clamouring for city status to Parliament. Be careful, you’ll get pushback!
And the NHS clinic in Liverpool is still called the CFS service…

Brilliant write up.

 

Given the joint response to the NiCE Guideline that the RCGPs signed their victim status is a bit shaky

https://www.rcgp.org.uk/representing-you/policy-areas/guidance-on-me-cfs

 

I wonder if Maeve’s family could request (or demand) her image not be used next to such a piece?

 

That would be an excellent idea, if someone knows how to contact the family to put that suggestion to them. It's insulting to her memory and to her parents that her photo is being used in such an underhanded, self-promoting way.


(Edited to change 'contact them' to 'contact the family', for clarity)

 

We could do that by contacting the Reader’s Editor.

 

Someone has put 50p in Garner and he’s off, using his energy and platform to support Miller’s op-ed

 

I couldn't think of anything constructive, so I asked AI to design a mute button for him.

 

@dave30th ?

 

There is more information in this interview with Maeve' mother on fluid intake . Said it was 'dangerously low' in hospital

https://mecfs-med-ed.org/2023/05/31...e-daughter-maeve-died-at-27-of-severe-me-cfs/

With regards to weighing I think one doctor said it wasn't possible as Maeve could not stand. They were trying to assess this through skin fold on her arm? I think.

 

On the specific question of fluid intake in Warren's testimony from my notes (I wish I had the energy to write more of these up into summaries):

Something else that I found troubling in that day's testimony that I didn't include in my previous writeups: the lawyer for the RD&E tried to justify the Trust's lack of response to Dr Weir's letter - the warning letter he had addressed to the CEO - in terms of Trust policy & by saying that they had instead written to Maeve's father: "as I've indicated the Trust policy is you wouldn't liaise" except "with the family", so "Dr Weir shouldn't have been getting a direct response". This struck me as wholly unprofessional.

 

There are weigh-beds.
It is hard to believe that anyone was taking the problem seriously.