MEA: Real People. Real Illness. ME Awareness Month 2020.

E

Eagles

Senior Member (Voting Rights)
MEA: Real People. Real Illness. ME Awareness Month 2020.



ME/CFS affects the lives of over 265,000 people in the UK alone. The ME Association put together this video, with the help of real people with ME, to show the different types of people suffering with ME.
 
I found this video from the ME Association with the same title - is it the video you're looking for?

(I watched only the first 30 second or so)



EDIT: I just watched a bit more of that video and noticed that the audio is very much out of synch with the video. Oops!

So one guess is that they are trying to edit the video to fix this and that's why the first one went private. Just a guess! I have no inside info or anything.
 
Last edited:
Trish said:
ME Association ME Awareness week article and press release.
https://www.meassociation.org.uk/about-what-is-mecfs/real-people-real-disease/
Click to expand...

Correction: the link above is to their 2019 ME awareness week article and press release

Less than £1 is spent each year on medical care for people suffering from M.E. and there is a chronic lack of central funding for biomedical research.
Click to expand...
Less than £1 is spent each year on people suffering from ME and there is a chronic lack of funding for medical research.
Click to expand...
I think this is mixing up medical care with research funds.
 
I realize that not everyone can do this, but I was able to record the audio and then play it back in sync to the video (with the video's audio disabled), more or less by trial and error.

The audio does not gradually fall out of sync (which can happen on youtube under some circumstances), so once you get it in sync it will remain that way.
 
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