Merryn Crofts - media and inquest

It says the comments have been moderated. Maybe they're in a moderation queue? The two comments on there were poste posted 9 hours ago as approx 7pm.

 

Medscape-journalist Miriam Tucker replies:
https://twitter.com/user/status/980831006419759104

 

I honestly think it's hard to know what is best to do, ignore him or challenge him, I would happily dismiss him as a crackpot but he first came to my attention a good while back when Sharpe thanked him on Twitter for trying to defend the 'irrational criticism' of the PACE trial:

https://twitter.com/user/status/784317201809481728


So there is a wee network going on there.

And Henrik does display a callousness that is hard to ignore, hard just to dismiss as zealotry. But does he really matter in the scheme of things?

I do though fully understand why some engage with him directly, he seems to enjoy actually goading. Or maybe English not being first language makes him seem more stilted/cold, not that I am defending him one jot, of course.

 

One day, I really hope it comes soon, that man will regret every syllable in those tweets.

I think he's so awful he may end up actually helping our cause.

 

Marian is right. It almost killed me about twenty years ago. If I had not taken my fate in my own hands by a calculated gamble I would have died long ago

 

Still just two. Looks like intelligent discussion not wanted. Mine were critical of the awful way the mail ended it by saying patient activists and some Drs believe it's physical etc. Still undermining us. I'm not surprised they didn't print it but can't believe no one else wrote in.

 

https://twitter.com/user/status/980710523179331584


https://twitter.com/user/status/980960339855634432

 

I was thinking that. He's a pantomime villain making it clear to everyone how bad this shit is. Glad to see Michael Sharpe showing his usual good judgement and associating himself. I'm starting to like Twitter, it's rather good at succinctly showing people up for what they are.

 

https://twitter.com/user/status/981003131646566400

https://twitter.com/user/status/981046240388378624

https://twitter.com/user/status/981290660371279881

 

Could someone who uses Twitter let Hillary Johnson know that Merryn died on the 23rd April last year, i.e. 2017? A factual correction would not detract from sentiments expressed, and which I share.

Wishing everyone improved health and every happiness. John

ETA to clarify meaning in last sentence.

 

This Swedish article (published today) is based on the UK articles above.

Expressen: Mamman vill att alla ska se bilderna på dottern
https://www.expressen.se/omtalat/mamman-vill-att-alla-ska-se-bilderna-pa-sin-doende-dotter-/

Google Translate, English ("The mother wants everyone to see the pictures on her dying daughter")
https://translate.google.se/translate?sl=sv&tl=en&js=y&prev=_t&hl=sv&ie=UTF-8&u=https://www.expressen.se/omtalat/mamman-vill-att-alla-ska-se-bilderna-pa-sin-doende-dotter-/&edit-text=

 

as per andys post
https://twitter.com/user/status/981504108816470016

 

ME Association Facebook: Channel 5 news this evening



Merryn's family were this morning interviewed by Channel 5 news following the overwhelming response to last weekend's news stories.

The interview should be broadcast this evening at 5pm and again at 6.30pm. And Dr Shepherd just informed me that he was also interviewed by Channel 5 briefly on the phone.

 

Thanks for posting, @Eagles, good to know about this.

What do you think about maybe changing the title of the thread to 'Channel 5 News interview tonight with family of the late Merryn Crofts (young PWME)' or something?

 

Thanks. I've just done as you suggest.

 

see also this thread
https://www.s4me.info/posts/59442/

 

https://www.youtube.com/watch?v=AOWVA7PFq4k

 

https://www.youtube.com/watch?v=AOWVA7PFq4k

 

Sadly when introduced by the Newsreader in the 5.30pm News, said Merryn had been severely ill for 6 days, not years. Sadly, think was a misread of the script - or even thought must be a typo.

Still, was important to have such a strong and personal piece on air, though wish this had never happened.