Merryn Crofts - media and inquest

Has the BBC ever done anything like this before? Or have they always toed the BPS line?

 

I've read somewhere that they did a big documentary some decades ago but there was a terrible backlash from the BPS-crew, and since then there hasn't been anything similar. Can't remember the name of the show it was on though. From recently I remember a piece being prepared that would be critical of PACE among other things, but that was cancelled after someone intervened. @Jonathan Edwards and @Russell Fleming should know a bit more about that.

 

I remember seeing a documentary some years ago. Could have been BBC, might not.

It was really good. One case couldn't be on camera as social services were involved, so instead they showed the changing season from her bedroom window when her family were speaking.

There was a young, pre-teen girl,already a cancer survivor who went voluntarily into SW's unit. The family didn't realize until they tried to visit that it was a locked ward and visits were strictly controlled/limited. She came out worse than she went in.

It was very good. I watched in tears, turned to my husband and said " surely, now things will change, now people know". Nope.

ETA - just realized how negative that sounded. That was then, this is now. I am very grateful to the Croft family for being so generous in sharing their experiences. Maybe this time....social media & all that.

 

https://community.scope.org.uk/discussion/44058/losing-my-young-adult-daughter-to-m-e

 

That really brings home a few things. I do hope that her inquest shows something important.

 

Copy and paste this URL to see the long Facebook post from the ME Association

Code:

https://www.facebook.com/meassociation/posts/1734001159990868

Facebook post from Merryn's family which shares the same MEA post.

 

So sad. Best wishes to all her family and friends.

 

I’m sad but happy they got the verdict they were looking for.

 

Hopefully it will be printed elsewhere, for those of us who aren't on Facebook.

 

Here is the link to ME Association

 

This is so important. Happy and sad.

(Thank you @Lisa108 for the link - I wanted to save it, and I couldn't on Facebook.)

 

Merryn's family are real heroes. Its so terribly sad but I am glad to see the truth being told.

 

You can see the report from the link Andy posted.



I can read it even though I don't have a Facebook account. A box pops up asking you to sign in or join, but there is an option to click on "Not Now" on that box which makes it go away (although it has a tendency to pop up quite often).

 

Link to the article on the Rochdale News website, http://www.rochdaleonline.co.uk/new...death-attributed-to-myalgic-encephalomyelitis

 

I found this photo of Merryn Crofts taken (I presume) before she became ill.

Just heartbreaking.

Bill

 

Poor, beautiful Merryn. It just breaks my heart.

 

Two more links :

https://www.mirror.co.uk/news/uk-news/young-woman-bed-bound-three-12559425

Article continues at link above...

https://www.manchestereveningnews.c...ter-news/young-woman-who-spent-years-14678759

Article continues at link above ...

 

I don’t believe she’s the first to have died of this disease. Others were just not recorded, As the diagnosis is unknown to medical examiners.

I spoke with Richard then Konneysberg a few years ago, and he mentioned that s young man he worked with who had dropped weight to starvation level and who was unable to absorb nutrition due to M.E. The hospital had sent him home, saying that he had anorexia and was vuntarily starving himself. Rich found an M.D. who would work with him, and told him to get the young man started on a PIC line So he would not die.

That was the correct course of action, and he improved. Once the young man (I never learned his name of course, confidentiality and all that) was a little better, he started on the methylation protocol developed by RVK and Dr. Enlander. Rich also stated that there were cases that he found too late, and who died. It did not occur to me to ask what cause of death was listed.