Maybe we can come up with something better?
Could be an interesting project for the spring.
Yes, we can do better than that. A lot better.
Great idea. But would they be willing to change it?
Great idea. But would they be willing to change it?
Dr. Emma Reinhold wrote the EDS toolkit for the RCGP's and I highly recommend folks read it with a thought on how can we do the same thing for ME!Carol = Carol Monaghan
Autonomic Dysfunction (including Orthostatic Hypotension, Postural Tachycardia syndrome and Vasovagal Syncope)
Autonomic dysfunction (sometimes also referred to as dysautonomia) is an umbrella term used to describe any malfunction of the autonomic nervous system, and can occur in many different medical conditions.
Autonomic dysfunction is commonly associated with EDS, especially the hypermobile type. Patients experience a symptom called orthostatic intolerance - the development of symptoms in the upright position that are usually relieved by lying down. The commonest syndromes of orthostatic intolerance found in hEDS/HSD are orthostatic hypotension, postural tachycardia syndrome (PoTS) and recurrent vasovagal syncope. There is much crossover in the symptoms of these three syndromes, which include presyncope/syncope, palpitations, fatigue, sweating, headache, exercise intolerance, blurring of vision and nausea. Symptoms of all three syndromes are known to be highly debilitating.
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Awful, truly awful. PACE and FINE cited as evidence for GET and CBT. @dave30th, have you seen this dreadful online course content for UK GPs ?
@EspeMor, @Action for M.E., I notice that Minister Steve Brine in the June debate referred to this terrible online course. I feel it would have been really helpful in the Parliamentary briefing MEaction wrote last week to have cited this course as evidence of the inaccurate training doctors are getting on ME. It would have shown clearly the false bps model is still being used in NHS and would have not allowed the Minster to feel he has responded to the comments by MPs of the lack of accurate educational training for ME by saying there is a GP training online course.
This is something we must tackle.I'll have a look at it tomorrow. My last proper job was editing online CPD modules for Doctors.net.
Maybe we can come up with something better?