METRIC (UK) Royal College of GPs' online course on ME/CFS

Awful, truly awful. PACE and FINE cited as evidence for GET and CBT. @dave30th, have you seen this dreadful online course content for UK GPs ?

@EspeMor, @Action for M.E., I notice that Minister Steve Brine in the June debate referred to this terrible online course. I feel it would have been really helpful in the Parliamentary briefing MEaction wrote last week to have cited this course as evidence of the inaccurate training doctors are getting on ME. It would have shown clearly the false bps model is still being used in NHS and would have not allowed the Minster to feel he has responded to the comments by MPs of the lack of accurate educational training for ME by saying there is a GP training online course.
 
My two pennies worth.

Suggestion : There needs to be two documents, one for GP's and one for specialists.

There is no way a GP can navigate the complexity of ME and co-existing conditions without knowledge. The specialists job is to rule out other diseases, look for treatable co-existing or overlapping conditions, provide treatment recommendations.

Referring to the recent Charles Lapp paper the list of treatable overlapping conditions in table 1 is pretty long. A GP cannot navigate this. Just think of the amount of people that could get help!
https://www.frontiersin.org/articles/10.3389/fped.2018.00415/full

In the beginning specialists could meet regularly to compare findings. Specialists would be able to document their findings and refine the process.

Perhaps I'm dreaming again..........................
 
Andy said:
Carol = Carol Monaghan
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Dr. Emma Reinhold wrote the EDS toolkit for the RCGP's and I highly recommend folks read it with a thought on how can we do the same thing for ME!
Things like this are really important as they can be very easily shown to your GP.

https://www.rcgp.org.uk/eds

I particularly like that it has a section on "emerging major associations" which details MCAS and POTS from an EDS perspective.
Here is an excerpt from the POTS section.
Autonomic Dysfunction (including Orthostatic Hypotension, Postural Tachycardia syndrome and Vasovagal Syncope)
Autonomic dysfunction (sometimes also referred to as dysautonomia) is an umbrella term used to describe any malfunction of the autonomic nervous system, and can occur in many different medical conditions.

Autonomic dysfunction is commonly associated with EDS, especially the hypermobile type. Patients experience a symptom called orthostatic intolerance - the development of symptoms in the upright position that are usually relieved by lying down. The commonest syndromes of orthostatic intolerance found in hEDS/HSD are orthostatic hypotension, postural tachycardia syndrome (PoTS) and recurrent vasovagal syncope. There is much crossover in the symptoms of these three syndromes, which include presyncope/syncope, palpitations, fatigue, sweating, headache, exercise intolerance, blurring of vision and nausea. Symptoms of all three syndromes are known to be highly debilitating.
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anniekim said:
Awful, truly awful. PACE and FINE cited as evidence for GET and CBT. @dave30th, have you seen this dreadful online course content for UK GPs ?

@EspeMor, @Action for M.E., I notice that Minister Steve Brine in the June debate referred to this terrible online course. I feel it would have been really helpful in the Parliamentary briefing MEaction wrote last week to have cited this course as evidence of the inaccurate training doctors are getting on ME. It would have shown clearly the false bps model is still being used in NHS and would have not allowed the Minster to feel he has responded to the comments by MPs of the lack of accurate educational training for ME by saying there is a GP training online course.
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Hello!

Noted. I am not sure Brine's response would have been any different if we have added that. Agreed it would have been useful, but all MPs and the minister had plenty of resources to answer and highlight this (including our briefing and many others that were sent by various charities!).

Rest assured, we will be doing our VERY BEST to keep lobbying on behalf of people with ME and the community!

Espe
 
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