Michael Sharpe skewered by @JohntheJack on Twitter

A student of his (from MIT), Danny Hollis, is on twitter.

 

Thank you so m uch for raising my pet issue which I discussed with NICE this week- They denied any reference to this in recent NICE Surveillance work- I know otherwise!

 

I've just read through all of this again, but can't find a comment on Twitter by Michael Sharpe along the lines of the PACE trial "just being a trial". Am I imagining it?

 

You mean this one?

https://twitter.com/user/status/982702998525825025

 

That's the one! Thanks. How do you manage to find things like that?

 

I don't know how @Esther12 found it but here's the advanced search link that I often use when I want to find something on twitter:

https://twitter.com/search-advanced?lang=en

 

Thanks @ahimsa , but the truth is that I've known @Esther12 for a long time now and can confidently report it is simply the result of a colossal brain, unbelievable organizational skills, and a susceptibility to flattery. (Only two of those are true)

 

Nah, it was just 'advanced search'. That's all it has ever been...

 

Can only assume that Sharpe is being unintentionally (and doubly) ironic here.

First he posts this

which can be read here for anybody interested, https://jamanetwork.com/journals/jama/fullarticle/2731897

and then posts this


or maybe he's trying to be useful, he posts a link to something that could have helped stop his medical misinformation, and then he finds another example of misinformation and shares it as an example? (No, I don't believe any of that either.)

 

Oh god, its so transparent! Sharpe trying to imply that any scepticism directed at his research is due to "misinformation".

I think its rather obvious he has no real understanding of the material in this paper, probably hasn't even read it. He just retweets things based on the sound of them alone, whether they enhance his twitter "image".

Who's game to ask if he's read the paper?

 

Sharpe should continue tweeting about the lightning process.

It makes him look like a raving quack. I think it also reveals how he really sees CFS: as choice and all in the mind.

 

The article he tweeted is by a girl in England who 'recovered' after 3 years using 'graded activity' which, from her description, sounds a lot like pacing having been off school for a year and a half (post glandular fever).

https://twitter.com/user/status/1120610605994430464


maybe someone could ask him what happened to the
PACE 10 year follow-up: feasibility study
https://www.hra.nhs.uk/planning-and...ies/pace-10-year-follow-up-feasibility-study/

eta: also,there is no point getting the data if you won't share it!

 

Oh good, MS is back on twitter. Only a matter of time before he shoots himself in the foot again.

 

but it's not just a trial.............it's an MS trial (queue music)

 

This is what the PACE GET participant's manual says:


Although the PACE papers primarily refer to CFS, if the authors had really thought that their treatments should be confined to CFS, and not to ME, then why have they never, ever, spoken out about the existing 2007 NICE guideline which says:


If they really believed what MS is always banging on about, then they should have spoken out about how the guideline did not fit with their research. And that GET and CBT should not be being recommended for ME, only CFS, as MS is saying they perceived things. But they did not speak out ... why not I wonder .

 

NHS PLUS... the testing ground for NICE and PACE.... my very favourite publication!!!!! STILL trying to GET..this publication and report withdrawn..

 

Does anyone know what Chris Clark's employment was before, and after, being CEO of AfME? The eassily available info specifies that he was CEO until 2006, but doesn't say when he started, or how.

 

He went onto another Charity Role I think the Stroke Association https://www.theguardian.com/healthcare-network/2012/dec/28/stroke-association-five-minutes