Michael Sharpe skewered by @JohntheJack on Twitter

@Pechius that is a good point and many people are unaware that this is part of a much bigger picture.

If you have a search within the forum there are a few threads that discuss or refer to:MUS=Medically Unexplained Symptoms, FSS=Functional Somatic Syndromes, PPS=Persistent Physical Symptoms, BDD= Body Distress Disorder, BDS= Body Distress Syndrome.


There are sinister changes that have been afoot for quite some time now within the UK to lump those with as yet undiagnosed, complex, or conditions where the aetiology is poorly understood. Bad news for everyone and happening at a time when some GPs are allegedly offered financial incentives not to refer patients to specialist services.

I believe this is something David Tuller is looking to address in the coming year.

 

If MS believes his ‘job is to write clear papers’ then he must have sleepless nights over PACE.... are there many papers less clear?

 

Its very clear. Its clearly full of alternative facts

 

I agree, he should do. But I don't really imagine MS having sleepless nights on matters of integrity. If personal injury lawyers or the like take a stronger interest in PACE, then he might be more prone to sleepless nights. Although part of me cannot help a gleeful thought on that score, I'd be much more interested in PwME finally being treated right - medically and socially. Hopefully we are getting there.

 

Because he just thought of it when he was writing the tweet as a way to protect his assets.

 

@Pechius, I agree with you. I would love to see your contributions in the thread @Snowdrop linked to (or any such thread).

 

U

 

Yes. Also he and others went on a world wide road trip promoting the over exaggerated claims from the PACE trial and collected many statements from other eminent people singing the praises of the conclusions.

He has had ample opportunity to say "my job is just to write clear papers" over the last few years but he has chosen instead to go around the world promoting falsehoods.

If he is now saying that PACE is not refering to NICE ME definition he cant use Cochrane reports as supporting evidence for ME treatments.

One would think he could have publicly stated that before taking 5 million quid from the public purse and deliberately electing a cohort they suspected would get the most benefit from their treatments. Even that didn't work in terms of proving efficacy in the specially selected cohort so they just changed the endpoints to get more favourable results.

I really think his admissions will help us with the upcoming NICE review.

Note book material? @Jonathan Edwards

 

I sense a degree of wriggling going on. From his point of view I would have thought it incredibly unwise to engage in such activity publicly, I would have thought any kind of legal advice would advise him to keep schtum. He may be layering his own undoings.

 

good

 

Notice how he doesn't answer any difficult questions about his choices or conduct?

 

Yep, it's just like the official PACE FAQs he and his colleagues put together. If the questions are easy or innocuous then they get validated with an answer, but if answering would look bad then it gets labeled as a loaded question or something similar. It's a public relations exercise.

 

There is absolutely no doubt about the fact, that in the study CBT or GET had been not beneficial.

I definitely don’t like the direction the twitter discussion took.
There was a mixture of different patients types, but in PACE actually CBT or GET was not even helpful for any kind of cronic fatigue.

 

Michael Sharpe has retweeted this.......
https://twitter.com/user/status/996453551403515904


baffled

(see this thread)
https://www.s4me.info/threads/pace-and-wessely-school-research-is-it-cargo-cult-science.3187/

 

First response: ROFL

Second response:
The first principle is that you must not fool yourself - and you are the easiest person to fool. - Richard Feynman

 

PACE is clearly scientifically inadequate. How could that have been more clear?

 

Sharpe has been retweeting numerous Feynman quotes recently - the irony of their insightful content being retweeted by someone like him is just staggering!

 

Its no surprise at all, those who believe their own lies think themselves righteous. Its probably related to rationalization