#MillionsMissing today, 12 May - post news, tweets, etc. here

You can buy protest socks?

https://twitter.com/user/status/995339510782148608

 

https://sockdrawer.com/products/womens-blue-q-this-is-my-protest-sock-crew-socks

 

https://twitter.com/user/status/995343491566743553

 

Did everyone go home at 5pm? Because the BBC finally posted an article on #MillionsMissing (Correction : ME or CFS ) at around that time...

http://www.bbc.co.uk/news/newsbeat-44094429

As articles go, it's totally pathetic. And it doesn't actually mention #MillionsMissing.

 

What makes me incredibly sad are the by now countless people who have put themselves out there today for the first time, trying to raise awareness, only to be completely ignored by their healthy friends and families.

What makes me really proud of the ME-community is the boundless support between PwME. There's now a whole campaign going on fb to like and comment each others posts, so people don't feel alone and abandoned and get the traction they need. It's weird that 'likes' count that much, but I guess it's the virtual equivalent of crossing the street to avoid talking to people.

 

I haven't seen anything on tv yet. There's been a massive TUC march covered, plus a knife crime march through London today Also covered. Our movement is equally newsworthy and Obviously our protests can't be marches but I think we are going to need to bump up the numbers attending, at London especially, to get national attention. Edinburgh looked the largest? And was well placed in a square with people all around. Plus they did a lie down in memory of the severe which was powerful.

 

Edinburgh was by far the best I have seen...it was brilliant. Just saw New York there, poor numbers....it didn't look like a great crowd. Its true we need our healthy friends but if they can't like an M.E related facebook post, there is little chance of them taking to the streets. Any post M.E related gets very few likes on my page which I find very hurtful but I still post now and again as not posting is just going back to being invisible....an emotional day...Carol Monaghan was excellent

 

https://twitter.com/user/status/995354898005987328

 

It's on channel 4 now
They've started featuring a severe in bed which is good. They're saying what's she waiting for ....

They now say we say it's underfunded, misunderstood and dismissed by NHS.

The severe girls mum is very good at blasting the patient blaming

Mentions the immune system, and our opinion standard treatments does more harm than good

Features the shoes as representing missing potential, poignant
Interviews now mother and dad of bedridden girl

DOH end with the joyful news of them investing and finding treatments (see other post of mine how this is misleading, back covering bullshit)

Happy ending with recovered endurance swimmer ??? (Who's idea?)

Generally Pretty good for us.

Weldone to all #ME activists involved today who got a lot the issues actually covered on national tv news. I've just rewatched it and the placards looked brilliant. Thanks to cherry for letting them film her so sick too. I feel # MM 18 has been a success now it reached wide audience, it's made a mark.

 

I missed that! I'm going to catch it on Channel 4 + 1 (Freeview channel 13) in an hour.

 

Yes it looked great. Maybe having one big rather than several smaller is the way to go, if people can travel. But it really well done. Bristol looked good too. London was thwarted by the rain and looked a bit cramped but I've still to see footage from that.

 

BBC Newsbeat Facebook post about their 'reporting' on it.

 

I'm not seeing a lot of pix from the US. I wonder if I'm looking in the wrong place?

 

Can anyone record C4 news item? Would love to post/share on social media.

 

Found link to item:

https://www.channel4.com/news/chronic-fatigue-treatment-inadequate-say-campaigners

 

But the east coast is only five hours behind - it's nearly 3pm there. And on the Pacific coast it's almost noon now.

I'm a bit baffled!

 

Ah!

https://twitter.com/user/status/995376225341206528

 

https://twitter.com/user/status/995377679166726144