#MillionsMissing today, 12 May - post news, tweets, etc. here

[Andy]

Found link to item:

https://www.channel4.com/news/chronic-fatigue-treatment-inadequate-say-campaigners

That was quite good, until the end, when we found out we just need to use trial and error until we find our ability to be endurance swimmers...

 

[large donner]

It's on channel 4 now
They've started featuring a severe in bed which is good. They're saying what's she waiting for ....

They now say we say it's underfunded, misunderstood and dismissed by NHS.

The severe girls mum is very good at blasting the patient blaming

Mentions the immune system, and our opinion standard treatments does more harm than good

Features the shoes as representing missing potential, poignant
Interviews now mother and dad of bedridden girl

DOH end with the joyful news of them investing and finding treatments (see other post of mine how this is misleading, back covering bullshit)

Happy ending with recovered endurance swimmer ??? (Who's idea?)

Generally Pretty good for us.

Weldone to all #ME activists involved today who got a lot the issues actually covered on national tv news

They also said that 'the government' have asked NICE to review the current guidelines.

 

[Gecko]

Please help us share this as widely as possible. Sheffield #MillionsMissing 2 min film.



Edited to add correct video

 

[Sasha]

 

[Sasha]

Terrific speech by @JenB (Jen Brea) - doesn't just apply to LA. Well worth watching. She blows me away, every time.

 

[Andy]

Direct link to Jen's video on YouTube,

 

[Andy]

Tokyo


ETA: It looks to be a general awareness video, rather than footage of an event.

 

[Sasha]

 

[Andy]

Please help us share this as widely as possible. Sheffield #MillionsMissing 2 min film.



Edited to add correct video

Just been able to watch this, kudos to the team who put it together so quickly, it's extremely well done.

 

[Sasha]

 

[Andy]

MILLIONS MISSING ME RALLY IN MANCHESTER CALLS FOR PROPER FUNDED RESEARCH AND TREATMENT
http://www.salfordstar.com/article.asp?id=4496

 

[Kalliope]

Local newspaper in Stavanger, Norway about today's MillionsMissing event. Very nice article with lots of pictures from a large shoe installation, interviews with several people including professor Saugstad who says:

May 12th is the ME Awareness day. I have participated in this for several years in a row. Every year I say I hope it will be the last time such a day is necessary. I hope there will be a stop to ME patients noe being taken seriously by the health service and forced to undergo unnecessary alternative treatment attempts that have no proven effect.

Article is behind paywall.
Stavanger Aftenblad: Skoene til de som ikke kan være med

 

[Sasha]

 

[Sasha]

 

[Webdog]

A couple pictures from Millions Missing at San Francisco City Hall.

 

[Sasha]

I'm watching the livestream from the San Francisco protest and Ron Davis starts somewhere around the 41 minute mark - very interesting, though my memory is too poor to tell you about it! He's saying a few things I don't remember him saying before.

 

[JaimeS]

did anyone spot a blond haired lady stuffing Fitnet leaflets into the shoes?

Uhhhhhh what? That's some high-quality farce right there.

 

[JaimeS]

I'm watching the livestream from the San Francisco protest and Ron Davis starts somewhere around the 50 minute mark (very approximately) - very interesting, though my memory is too poor to tell you about it! He's saying a few things I don't remember him saying before.

Mine is 1:05 - 1:10.

 

[Invisible Woman]

Wow. Very powerful and moving @JaimeS. Thank you

 

[Esther12]

Thanks to all those who were involved in this. I've got a load of tabs open with things to catch up on over the next week!