New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

Wasn't that.

"We really need to do a whole lot more to make readily available behavioural treatments for #chronic pain more evidence based"

 

https://www.meresearch.org.uk/nice-draft-guideline-on-pain-and-application-to-me-cfs/

 

Healthwatch have produced a survey to gather info on those with chronic pain to feed back to NICE.

WARNING: includes questions on suicidal thoughts and self harm.

https://docs.google.com/forms/d/e/1...JccgrcBtTwe0LuYd7Slq65mqbZ5pEVg_iX9CKt73GrhSg

 

There are so many ways that answers to that survey could be twisted to use against a patient. And I couldn't answer quite a few of them because the actual situation I'm in wasn't given as an option. I hope I'm never in a situation where I am forced to answer this questionnaire as a condition of continuing to be prescribed the pain relief I get for chronic pain.

 

I haven't taken the survey, so I don't know how good it is or not.
https://twitter.com/user/status/1295368307093188609

 

program on C4 How to beat Pain
"What simple techniques help relieve chronic pain, from migraine to backache? Is it often in the mind? Do yoga, tai chi, or acupuncture work? And who tolerates pain best, men or women?"

https://www.channel4.com/programmes/how-to-beat/on-demand/70184-003

I thought it rather trivialised the issue (eg describing migraine as a bad headache).
The only interesting bit was
"The most fascinating case was 71-year-old Jo Cameron, who feels no pain. She broke her arm as a child, but didn’t mention it until her mother noticed the limb turning a funny colour.
Scientists have discovered she has a pain-suppressing genetic mutation, which could prompt the development of new pain-killing drugs."

review on the program in 'the I'
https://inews.co.uk/culture/televis...ingless-kate-quilton-javid-abdelmoneim-576971

eta: included patients with fibromyalgia and RA

 

Very poor questionnaire, frankly. I don't think the responses will be of much use.

Probably worth filling it but it's poorly worded and structured, very superficial. As is tradition with anything psychosocial. By physicians for physicians.

 

By physicians for physicians to garner a particular response ?
Or will the expanded answers such as @Trish ' s be significant enough to count for something

 

The survey is presumably a response to the d(r)aft Guidelines, designed to be drawn up, completed over two week period, ie 31st Aug, and then analysed for results to be submitted by the consultation deadline of 14 Sep.

I think it is well worth noting things you want to add as you go through, so that you can add them in the final comments box.

 

There is a petition asking for these draft Guidelines to be amended, which I think is hugely important.They are getting close to the 25k target of signatures:
https://www.change.org/p/national-institute-for-health-and-care-excellence-stop-the-proposed-cruel-changes-to-chronic-pain-nice-guidelines?recruiter=false&utm_source=share_petition&utm_medium=facebook&utm_campaign=psf_combo_share_initial&utm_term=psf_combo_share_initial&recruited_by_id=370d4220-ee33-11ea-9854-afc7f9173e87&utm_content=fht-23919198-en-gb:0

Please sign if you believe that people with unexplained pain need access to some meds other than antidepressants!

 

and also top of NICEs list of treatments is CBT, and ACT. This has got to stop.

 

Petition now over 24,000.

 

Letter to the Editor in today's TIMES from six pain consultants:

(Registration required for access)

https://www.thetimes.co.uk/edition/...lding-the-united-kingdoms-integrity-g97cjlqtz

and a brief article on page 4 of the print edition:

Patients will suffer under pain advice by Katie Gibbons, 14 September 2020


(Note the NICE Consultation closes on Monday 14 September 2020 at 5pm.)

 

All the day's Letters to the Editor are usually listed under the one link.

 

There might be an individual link available for that specific Letter tomorrow.

 

Letter says 150 more signatories online. From an article in Pulse and comments from doctorsnet, many GPs and other doctors are really anti this draft as well.

 

Full list of signatories.

 

Above petition reached 25k and has been sent to NICE. It is still ongoing if anyone still wants to sign.

Yes @Trish, had not realised how disappointing the Times letter was!